Chi -chi: Hello . I am so unhappy and... - Fibromyalgia Acti...

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Chi -chi

chi-chi profile image
22 Replies

Hello . I am so unhappy and in pain. They call it Fibromyalgia but I really have silicone poisoning from an implant I had after breast cancer. They made me wait so long to remove it that most of the silicone had leaked into my body.

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chi-chi profile image
chi-chi
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22 Replies
tulips123 profile image
tulips123

So sorry Chi-Chi. It is my experience that Fibro Myalgia can develop as a Syndrome for many different reasons. What an awful experience for you. Doesn't mean you have FM, neither does it mean you don't, but perhaps it is a possible factor. Still so much to learn about it. Have you been diagnosed? I know little about silicone implants apart from recent tv programmes. This is a friendly and supportive Forum and perhaps others will be able to help you more than I can. Christmas and New Year tend to be quiet times. If you need to 'talk', I can support. Tulip xx

my friend had a leak, and didn't know, and she became very ill too. Have they actually said it has caused FM. Sounds mad, and after you have been through . I am so sorry for your pain seems so cruel you now have to endure this as well. I so hope it isn't and you can get the poison out of your body in time. I wish you well and hope things improve really soon.

God Bless.xx

chi-chi profile image
chi-chi in reply to

Thank you for your kind message. I surprised myself at how l coped with the cancer. The hospital became my second home with all the ops and chemo and I was so pleased with my reconstruction until I felt it pop and it began to shrink! Therein lies my troubles. I didn't feel ill at all at first but the more it leaked the sicker l became. It should have been removed immediately but the hospital kept fobbing me off. I was so ill that I contacted my local MP in desperation he was amazing and got me in within 3 weeks. But by then my implant was like a deflated baloon. The silicone had gone to my muscles and joints and now here l am in constant pain and diagnosed with fibromyalgia which has the same symptoms as silicone poisoning.

Happy new year to you xxx

in reply to chi-chi

Happy new year to you too. Take care.xxx

TheAuthor profile image
TheAuthor

Hi chi-chi

I am so genuinely sorry to read this and I sincerely hope that you can find some resolution to your pain issues. They say that Fibro can be brought on by a trauma and I am sure that with everything that you have been through there must have been some trauma in there for you?

I want to genuinely and sincerely wish you all the best of luck.

All my hopes and dreams for you

Ken

SarahConnor profile image
SarahConnor

I am sorry hope you feel better soon x

chi-chi profile image
chi-chi

Thank you for all your kind replies. I didn't know what to put at first. I have been like this for 15yrs and have been put on every painkiller but they just made me feel ill. The best relief for me is to sit in the hot sun as my muscles relax but we don't get much in England. My lovely youngest son did everything for me and his company took my mind off the pain. His girlfriend said that she would finish with him if he didn't move in with her. I had to let them take my dog as my son walked him for me. I couldn't afford to live in my house on my own so I had to move to a flat. The neighbours here are not friendly. I have been here a year but I miss my garden as I loved to feed and watch the birds. I miss my son, my house, my dog and my friendly neighbours. They come every Sunday and do my shopping and my son cooks Sunday lunch. I cry when they go because I don't see anyone all week and I can't go out on my own. Well that's the complaining done 😁. I wish you all a Happy New Year and thank you for listening. Oh l am 66 by the way xxx

Telynores profile image
Telynores in reply to chi-chi

You suffered losses which you need to grieve for, your son, your dog, your home and your garden. Four years ago my daughter was moving away, we had long discussions about our dogs and horses. I often rang her at work, in the winter, to warn her that I hadn't been able to walk the dogs or go to the horses so it was only practical that they went with her. So many losses. I haven't grieved, both dogs have now died of old age and I only see the 'girls' occasionally. My home is empty (I'm facing eviction as it is being sold) I am close to being able to have an assistance dog though once I'm settled.

Like you the sun warming me through to the bones is therapeutic.

So much we have to go through but we're strong people and we have each other :-)

Telynores profile image
Telynores in reply to Telynores

PS, my children live in Yorkshire, near Aberdeen and in Exeter, I live in rural Wales.

chi-chi profile image
chi-chi in reply to Telynores

I am sorry to hear that you have lost everything too. When you have pain it is difficult to cope with the other problems in life. I had family in Menai Bridge, Anglesey. My aunts and uncles have died and my cousins have moved away. I love your photo. I can't put one on as I use my smartphone. It saves me paying for the Internet twice. When you have led an active life it is very hard being unable to do the things that you did. My mother has a better life than me and she is 87 xxx

chi-chi profile image
chi-chi in reply to chi-chi

Ps l was never able to have my own horse but I went riding every Sunday morning at the local stables. The best exercise ever. Use all your muscles and plenty of fresh air. I miss it so much. xxx

Telynores profile image
Telynores in reply to chi-chi

It's good that you were able to ride :-) As a teenager I had one summer of riding for an hour at weekends. My parents wouldn't let me have my own, I was 30 :-P by the time I had my first horse, mother to my now 24 year old 'baby' :-). Sometimes it feels worse knowing that they are still here I just cannot get to them without help. I now have to sit like a sack of potato's when I do ride so that I don't use all those muscles, so far my mare has been so very good :-) she can be awfully naughty and that hurts :-(

It was such a big part of my life, like walking the dogs and looking after my sheep, pigs and cows and oh, bringing up my children, so miss that life. My Christmas day was me, my cat and my memories, such good memories :-)

chi-chi profile image
chi-chi in reply to Telynores

I am pleased to hear that you can still get on your horse ☺. When you have been an active person it is so hard to not be able to do the things that you did. I danced and I loved to cook for the family. I even enjoyed housework. I want to vacuum but I can't do a thing. I have to wait until Sunday when my son does what he can. I taught him to cook when I couldn't lift things. Now he cooks for his girlfriend. I am sad that you were alone over Christmas, I was lucky to have my youngest son both days to cook. I feel sad when he goes. Loneliness makes things worse when you have pain. I wish that we lived nearer to each other. Take care always and if possible a happy new year to you 😚xxx

bigfattoe profile image
bigfattoe

Arrh hun im so sorry for you were do you live which area....im the same on my own...wish we were neighbours id be round to see you for a cuppa..

My neighbours are in there 80s bless them they hibrate...so you can image how quite it is for me.mind you im bidding on the council trying to get nesr a bus route so i can get out as im in a culdesac by a massive park and buses are very limited...the council have said i can move just got to get proof in to up my band to get me out of here..fingers crossed got alot if running around to do in new year to get me out...i hope you cheer up hun ...wish i could helpxxx

chi-chi profile image
chi-chi in reply to bigfattoe

Hi. My neighbours are the same haha. I can't travel by bus it kills me for days after. I live in Essex. I would love someone to come for a cuppa and a chat. My other neighbours were young with children and friendly. I like the young ones my son kept me young and his mates coming round.

Grandma24and1 profile image
Grandma24and1

Hi there Chi Chi. I have only just read your post. I live in Essex but...........it is a big county. Whereabouts are you? I'm in Witham, between Colchester and Chelmsford. If you're close to me,I would love to have a coffee and chat with you. Unfortunately I no longer drive, due to, oh lots of reasons! LOL

Sending healing hugs to you.

And a Happy, Healthy New Year to everyone on the forum. x x x

chi-chi profile image
chi-chi in reply to Grandma24and1

Hi grandma. Thank you for your message. I live in Maldon so not far from you. I can not travel by bus it is too painful. If you can get here l would love to see you. I have a good fish and chip shop opposite so I would treat you to fish and chips. Happy new year xxx

milo4 profile image
milo4

Hi

I am so sorry to hear that you are going through a bad time, after going through all the treatment of breast cancer.

I to had breast cancer and I know how you feel about them taking their time, i am still waiting to have a nipple made.

I was diagnosed with fibromyalgia after my treatment.

Where are you now with treatment, who diagnosed you with fibromyalgia?

Gentle hugs trace xxx

chi-chi profile image
chi-chi in reply to milo4

Thanks so much. The pain clinic at the hospital said that l had fibromyalgia. I found out that it just means unexplained pain! 😊xxx

I have just read all your messages, and I am so sorry for all your loses, and the fact that you have to be on your own a lot of the time. Have you looked to see who is near by you in your community, you may all have someone near and you didn't know it. Somehow I hope you enjoy your New Years either with or without anyone, it makes me feel sad that you are so alone, don't think I could bare it. I wish you all the best happiness and gentle hugs to you all.

Take care.

Tracey.xxxxx

chi-chi profile image
chi-chi in reply to

Thank you for your kind words. It means a lot to know that someone cares. I wish you all the best in the new year. Hugs xxx

chi-chi profile image
chi-chi

Hello everyone. I am having difficulty leaving a post unless l get a message to reply to. I hope that you all had an enjoyable Christmas and new year. I find that I can cope with my pain easier if I have someone to take talk to and take my mind off it. So I wasn't too bad over Christmas. I was picked up and rather spoilt for 3 days so the last week has been difficult being all alone again. I watched the neighbours enjoying the new year out of the window on my own. Sunday is my best day as my son and his girlfriend visit. Now I am alone again for another week. I used to visit people who were alone and help them but I didn't expect it to happen to me. But then none of us do l suppose. xxx

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