Fibromyalgia Awareness day, isn't it?

[FoggyMoggy]

It is Fibromyalgia Awareness day today...so thinking of you all. I had a migraine last two days, and laid up in bed. But not so bad today.

[Hartleyhare2]

Sorry to hear about your Migraine Moggy they are really disabilitating. Yes, happy Fibromygelia Awarness day, apparently it's the 20th one. Maybe the medical community may get their act together and the British Medical Council finally release NICE guidelines on how to treat fibro. There again as a suffererer I don't understand it from one day to the next so it must be a nightmare for doctors who like to label and quantify everything!

There is a short video on the American fibro awareness site.

Hoping all are having a low pain day and pacing themselves.

Patrick x

[FoggyMoggy in reply to Hartleyhare2]

Thank you for your supportive words, Patrick, and hope you're having a pain-free day yourself. Wow, I didn't realize it was the 20th one but then time sure goes fast these days! Yes I do hope we can get some help and answers in the not too distant future! x

[Hartleyhare2 in reply to FoggyMoggy]

I hope they do too. From my reading it will be based around the CBD and THC found in cannabis. I know it's controversial but it ticks nearly every box in treating aches, pains, headaches and sleep disorders. I'm afraid I'm cynical about how much research will be done due to the lack of big profits for the giant pharmaceutical companies. x

[FoggyMoggy in reply to Hartleyhare2]

Yes, me too. I am also investigating thyroid issues. A lot of people with hypothyroidism have very similar symptoms but that's another thing that isn't recognised by GPs if your bloods fall within the lab range. x

[Hartleyhare2 in reply to FoggyMoggy]

I read an article recently that made the bold statement that most fibro sufferers will have thyroid issues as well. It also went on to say that the acceptable lab ranges were ineffective and that much broader ranges and investigations needed. That's all I know but would like to learn more about it in the future. x

[FoggyMoggy in reply to Hartleyhare2]

Yes, there's a good group on Facebook - thyroid uk. I have learned a lot, and also there's a group in this community, thyroid uk. There is one leading light, John Lowe, who claimed most Fibro problems are undiagnosed thyroid ones. Yes, the ranges are hopeless. I know my T3 is very low but because it's within range they won't give me anything. But even many people who are prescribed Levothyroxine need T3 as well. T3 was highlighted on the One Show recently, it's one of those medicines that they say is unaffordable here and yet in Greece it is pence! x

[Hartleyhare2 in reply to FoggyMoggy]

Thanks for that info, I shall be sure to look both sites up 😊 x

[FoggyMoggy in reply to Hartleyhare2]

Let me know if you need any links x

[Dizzytwo]

So glad to hear your Migraine is abating today FoggyMoggy They are horrible things to suffer with. I used to have the pain ones for years then for some reason they stopped and i started getting the Aura ones. Both still make you feel hung over for a few days though. I hope you have a nice weekend. xx

Mo

[FoggyMoggy in reply to Dizzytwo]

Many thanks, Mo. Yes, I had the pain ones, then I got a spate of getting the auras, with less pain, weirdly, and now back to the painful ones again. I was hoping they'd abate with me going through the change. They did seem to for a while but then went on HRT patches and they got worse again so I stopped them a couple of weeks ago.

Have a good weekend yourself

Moggy x

[TheAuthor]

Hi FoggyMoggy

I am so genuinely sorry to read that you have been laid up with a migraine, and I want to sincerely wish you all the best of luck and please take care of yourself my friend.

All my hopes and dreams for you

Ken

[FoggyMoggy in reply to TheAuthor]

Thanks Ken. Much appreciated! I was wondering where you were and glad to see you are still here. Moggy

[TheAuthor in reply to FoggyMoggy]

Thanks my friend, I am still working the night shift! lol!

[FoggyMoggy in reply to TheAuthor]