Coccydinia

Hi there,just wondering if anyone else has had this or has it? I had a fall 4 months ago and now I've developed coccydinia and the pain is just awful especially when sitting. I've got myself a special cushion which helps a bit. I've also seen my doc and she has told me to take regular ibuprofen alongside my other pain killers. They aren't help much at all. Has anyone else got any advice? I'm feeling pretty miserable :(

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  • Hi Teddysmum, nice to see you, haven't seen you in ages, sad though that it's because of a problem πŸ˜•

    I haven't had or got Coccydinia, but I have in the past had fractures of my coccyx .

    You say you have a special cushion which I'm hoping is something like a swimming ring, so that it takes the pressure off your coccyx. I'm wondering whether a little heat applied to the area might be of help, or alternating heat and cold. I really do understand the full pain of your situation as I've also had lumbar spinal fractures too and I end up having to take a fairly high dosage of opiates to get on top of the initial agony, and then once treatment has taken place I drop them back..

    I don't think I've been of much help, but I hope someone else will come along with some better advice, but know you have my sympathy and I'm sending lots of positive healing vibes your way 😊😊

    Foggy x

  • Hiya Foggy nice to hear from you! How are you doing these days? I don't know why I haven't been on here,guess I haven't had much to say really,life has been very busy as my daughter has been quite ill and it's still ongoing :( have had a lot of Doctor and hospital appointments which has been awful with this bloomin coccydinia! It has probably made it even worse but I've had to do it. Yes the cushion I have has a bit missing out the back so there isn't pressure on my coccyx but tbh it's not that great. I don't think it is thick enough. I'm trying a heated wheatie bag but can't face a cold one but maybe I should to see if it helps. Gosh your back must have been excruciating with a fracture! My doctor hasn't offered me an X-ray even,I may go back if it doesn't improve as I do have screws in my back from an operation I had years ago and I would like to know if they have been affected by my fall.

    How is your lovely dog? I still have mine but I am really struggling to take them out while I'm like this :(

    Xxxx

  • Well I suppose I'm doing as well as can be expected under the circumstances, I had a kyphoplasty several weeks back now and that has seemingly done its job. Apart from that, same old same old. Mr B is still going despite a bit of a blip the week before last when I thought I might lose him and Poppie is being her usual wicked but extremely lovely self. What would we do without them ??

    I would push for an X-ray if I were you and am surprised your GP didn't offer you one under the circumstances. I would really insist on that and possibly also on a dΓ©jΓ  scab to check about osteoporosis.

    It's so lovely to see you again, blast from the past πŸ˜‰πŸ˜ƒπŸ˜ƒπŸ˜ƒπŸ˜˜πŸ˜˜

    Foggy xox

  • I had coccydynia which started out of the blue about 15 years ago. I put up with it for about 7 years - trying all kinds of things from physio to acupuncture but nothing really worked. It was incredibly painful and I did use a coccyx cushion which helped a little bit but I found I couldn't sit down normally and driving was difficult - getting back out of the car would make me scream with the pain.

    Luckily for me I was eventually referred to a wonderful surgeon who was able to help me by manipulating my coccyx under a GA and putting in some steroid injections whilst I was under. This procedure worked brilliantly for me and I haven't had any significant problems since then although I have to be careful about sitting on a hard surface for any length of time. I apparently have a hypermobile coccyx which may be connected to connective tissue problems as I also have SLE, Sjogrens and APS which are all autoimmune.

    Don't put up with it hurting for months and years on end like I did but go back to your doctor and request a referral to an orthopedic surgeon. coccyx.org/ is also a very useful resource if you haven't found it already.

  • When around 8/9 I sat down on a broken coke bottle that was buried in the ground and cut the tip of mine off. So I have always had pain in that area. In my case there is nothing they can do about it. I set on a pillow or something soft when I can. Setting on something hard for very long I begin to hurt. I set to one side in that case. I lean I guess is how you would say it. Also being from the south and being brought up. A lady crosses her legs when she sits. It actually takes some of the pressure off that area. I hope that this helps you a little.

  • I am so genuinely sorry to read this and I sincerely hope that you can find some resolution to this issue. I have not got a coccyx (due to Osteoporosis) but I still get a great deal of pain in that area as a result. I want to sincerely wish you all the best of luck.

    All my hopes and dreams for you

    Ken

  • I had an x-ray of my coccyx a couple of weeks ago, see GP on Friday though there is, I understand, no treatment. I'll let you know if anything positive transpires fro it.

  • Thanks for all your replies everyone. Telynores how are you coping with the pain?

  • If you have the type of tailbone pain where you have to keep changing from cheek to cheek, then it 'might' be down to a vitamin deficiency.

    (Not saying yours is too Teddysmum43)

    My Doctor said there was no cure I would have to learn to live with it and gave me some rub in gel, I have now 'cured' my tailbone pain, but it comes back within hours if I forget to take my daily vitamin pill.

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