Pregabalin: Hi all, I have been taking... - Fibromyalgia Acti...

Fibromyalgia Action UK

59,986 members67,154 posts

Pregabalin

Kasha profile image
15 Replies

Hi all,

I have been taking Pregabalin for approx 5/6 weeks. For the first week or two I felt a huge improvement but then I thought I was having a flare (my flares don't usually last longer than a week) well I am still feeling awful and wondering if it could be the pregabalin? and not a flare, I am on 75mg morning and night. My fibro pain has intensified, I have a new pain that i can only describe as my leg and shoulder muscles feeling like I've done a gym work out the day before :-( but my worst symptom is just feeling dreadful, I feel down, I don't want to go anywhere, I'm exhausted (and I know this is typical fibro but my symptoms have so intensified) I suffer depression and really feel worse than I've felt in a long time. SO has anyone else felt like this on Pregabalin? and im seriously considering coming off it, is it safe to just stop or should I ease off it? My doctor has said to stop taking it if it doesn't help but didn't say that I can just stop? thanks for any advice.

Written by
Kasha profile image
Kasha
To view profiles and participate in discussions please or .
Read more about...
15 Replies
Regnofibro1 profile image
Regnofibro1

DONT just stop ease off. I take max dose allowed 300 mg in the morning and 300 at night. I myself have thought about coming off slowly. My problem is I remember the pain before I started it. I have been reading about a possible link to cataracts but so are some other meds I am on. So I am thinking about options. I wish I could tell you one way or the other but I just don't know myself!

Shadows-walker profile image
Shadows-walker

You can have this in fibro it's just another symptom unfortunately,I live with that bit 80% of the time at the moment , I have been given hydrochoquine for this but only on a maintenance dose as I have other things going on .

Go chat to your GP , keep fighting but

Be kind and gentle to yourself

Chris hugs

Mooskie profile image
Mooskie

I feel the same way while taking, lyrica! Also developed swelling around my ankles, so I went off the drug and am doing much better! I suppose every one is different but my belief is if you can get by without the drug, do it! There is always the downside to any drug. Good luck...hope you feel better soon.

Kasha profile image
Kasha

Thanks everyone, I think I'm going to try to come off it, after all if there is a huge difference I can always go back on it. I really don't know how i could feel much worse than I am now.

Regnofibro1 I have also had blurred vision, I couldn't see this morning, I kept wiping my glasses thinking it was them lol think im def going to give them a miss.

Regnofibro1 profile image
Regnofibro1 in reply toKasha

Yes ma'am I understand that! It is a concern. I wish you the best of luck.

Angelseven profile image
Angelseven in reply toKasha

Hi

I also felt much worse on Pregabalin - like you I just felt awful so came off it. I don't recall coming off gradually but was on a fairly low dose.

You are making the right decision if it doesn't suit you.

All the best to you.

Jane

Dionne0208 profile image
Dionne0208

Yes I tried it and my depression got much worse, was only on it for about 2 weeks and couldn't stop crying, when I spoke to my dr he took me straight back of it, speak with your Dr before coming of as they normally replace it with something else x

Kasha profile image
Kasha in reply toDionne0208

Hi Dionne, I think I've tried most of the other meds so not sure what they would replace it with, I just feel like a zombie, sort of emotionless, numb...its hard to explain but I know I don't feel like ME! lol thanks for your help x

Regnofibro1 profile image
Regnofibro1 in reply toKasha

Have you tried cymbalta?

Kasha profile image
Kasha in reply toRegnofibro1

I'm not sure, it doesn't ring a bell, does it have any other name?

Regnofibro1 profile image
Regnofibro1 in reply toKasha

Lyrica

TheAuthor profile image
TheAuthor

As the others have said, Pregabalin should not simply be stopped. Please consult your GP prior to attempting this. I want to gneuinely wish you all the best of luck.

All my hopes and dreams for you

Ken

metty profile image
metty

hi, you are on the lowest dose so I doubt everything new is the pregabalin although you can never be sure about the side effects of a new drug. you should speak to your GP before coming off. I have been on pregabalin for 6 years and take 225mg morn and night, I don't know if it helps as i am always in pain but my GP says i would be in more pain if I come off it. Not every med suits. You could stop the 75mg in the morn and keep to the eve one for a week as you are supposed to come off of this med slowly so that would be my advice if you don't want to talk to your gp again. Good luck x

Like yourself Metty, I'm on 450mg daily, but I stagger mine over 3 periods. I tried to wean myself off it, mine was for weight reasons, I knew I would suffer as a result, but it seemed my only option as my depression was getting worse as a result of the weight gain. I was wrong, I had all but forgotten how excrutiating the pain could be without it. For me, it seems the lesser of two evils and it did prove the point to me that it was actually doing me some good!

Everybody's different though Kasha and if it's causing you significant problems, especially in respect of your depression, I would urge you to go to your GP. 150mg daily shouldn't be that hard to come off. Good luck and good health, Karen xx

Ans24 profile image
Ans24

Hi Kasha hope you are doing well. I know this is a late reply. But I was wondering how you are doing on or off the pregabalin? Did you decide to come off and how did that work out for you, did you experience any severe withdrawal symptoms? I too have on going depression and Pregabalin was suggested to me but I am unsure if I should take incase it makes my depression worse. If you did successfully get off Pregabalin what is it you now take for pain management? Many thanks.

Not what you're looking for?

You may also like...

Pregabalin

I have been taking pregabalin 25 mg twice a day since the summer. Two weeks ago it was put up to 75...
glochessum profile image

Pregabalin for fibromyalgia

Hi. I have had ibs and muscle pains for 40 years and finally been diagnosed with fibromyalgia! I...
Gingers profile image

Pregabalin

My experience with pregabalin has been mostly good. When I first started taking it , it took me a...
Namaste65 profile image

Pregabalin

Saw my G.P. yesterday,first time since my fibro diagnosis and she gave me Pregabalin,took 50mg last...
bvlgari profile image

Is Pregabalin better for pain management.

Where to start? My Pain Consultant yesterday prescribed Pregabalin and to wean off Gabapentin...
MichelleF66 profile image

Moderation team

See all
Hazel_Angelstar profile image
Hazel_AngelstarAdministrator
Lynda_FMA_UK profile image
Lynda_FMA_UKModerator
Sarah_fmauk profile image
Sarah_fmaukModerator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.