Fibromyalgia Action UK
38,766 members51,028 posts


Well I have just filled mine in with the help of someone who fills them in all the time for her job, have no idea what job title she has lmao.

It was not too hard as I have done loads of research on filling it in and she really knew what she was doing. I had to put down how the illness was affecting me especially financially, the actual names of my illnesses means nothing and gets you no points which I found strange however I did as I had been told and mentioned things like ..... Have to have a scooter have to pay for maintenance of scooter. Have pvc cover on my bed which I have to replace on a regular basis. Can opener. Jar opener and so on ....

I put down as many names of professionals I could think of who were involved in my life ie, gp social worker cpn blah blah .....

I had no actual letters or appt dated letters supporting my application which apparently really helps but as I had named all the professionals I am hoping that is enough.

I told them how it affects me physically ie pain constantly and unable to shower myself every time etc.

I think I am writing this post in the hope that it helps others who have yet to fill it out, remember its not the actual name of your illness that matters its how it affects you and how much it cost you.

I wish you all well with your PIP forms .... xxxxx

4 Replies

really good advice. i fill in PIP and ESA forms all the time in my job. never make the assumption that they know what you pain is or what you needs and daily life is like. If you have an OT , CPN then ask for the action/needs assessment plan this will list your needs and/or the adaptions you need add this to you PIP form You can still send it even if you posted the form. Just put your NIS number and name on the top.

Good for you for empowering yourself.

Look forward to hearing about the outcome.

I don't know how to do smiley faces etc. on the pc ... so I send you a gentle hug instead.



Thank you for taking the time and trouble to post this as I think it will be very useful to alot of people who may not have access to help.

I used to say when I filled in AA forms that the person making the decision knows nothing about you so in one way you have to paint a picture of your life and its problems for them. As you say it is no good just saying I have fibro or osteo but you have to outline how that affects you on a daily basis and what you have to use to help you with your daily struggle then they can see the true story.

I am pleased that you got help from someone who has experience of filling out these types of forms. Let us know how you get on, fingers crossed for you.x


I have never been through anything like this but I want to genuinely and sincerely wish you all the best of luck with your claim.

All my hopes and dreams for you


1 like

Good luck with the medical. I went for mine last week and am now sitting saying I never said this and never said that and really kicking myself now. I would advise you to write everything in a note for yourself so you can say exactly how if affects you as it is a stressful time.


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