Pip queues : Still a lot of members... - Fibromyalgia Acti...

Fibromyalgia Action UK

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Pip queues

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Still a lot of members asking about pip All you have to tenner it helps if you have been diagnosed Explain how you really feel Provide your medication list We’re you have pain and difficult movement tell them What I’m trying to advise you all is be truthful and explain difficultly walking and getting around If you can’t walk further than 50 Metres They need to know all about you condition and how it affects your daily life especially cooking hot food and going to the loo And things about your general hygiene In my opinion you have to explain it as if is your worse day ok

7 Replies
Mdaisy profile image
Mdaisy

Hello Juggzy

As per other post about PIP, this may be your opinion but you must not just base it on your worse day as, as you say it it fluctuating and you could face issues in the future. Also, please do not write 'good' & 'bad' days as the assessor seems to think 'good' days are fit and healthy - I would say it is much better to write that your symptoms range from mild, moderate to severe and explain that activity worsens symptoms of fatigue and pain limiting your ability to achieve daily activities of living. This way you are explaining the symptoms always affect your daily life and that on severe days this means you are more disabled or find them extremely debilitating and therefore not able to do tasks X, Y and Z. :) You could also say that 5 days out of 7 you experience severe symptoms or put it into a percentage to explain that the majority of the time if this is the case and that mild symptoms occur very infrequently.

Anyone wishing for advice and guides to fill in forms, please contact the FMAUK Benefits Advisor - Here's a post with all the contact information and other helpful websites;

healthunlocked.com/fibromya...

Hope this helps

Emma :)

in reply to Mdaisy

Yea I agree

desquinn profile image
desquinnPartnerVolunteerFMAUK Trustee

as Mdaisy has said claiming only on your worst day is not the way to do it and could open you to fraud claims and the stress that comes with it. You need to be truthful.

from disability rights uk

"Describe the difficulties you face in as much detail as possible.

• Do you need help from another person to do the activity?

• If you do need help, what kind of help do you need? Does someone physically help

you, reassure you, encourage you, remind or explain to you how to do something? Or

do they need to supervise you?

• Do you use aids and/or appliances to help you in an activity? If you do, say what they

are and how useful they are.

• Can you do some parts of the activity but not others?

• Are you unable to do the activity at all? Explain why.

• Can you do an activity but it takes you a long time? How long?

• If your needs vary, describe in what way and how often? Explain about good and bad

days or how your needs vary throughout the day.

• If you regularly have accidents – such as falls – or are at risk of having accidents,

explain why and when they happen.

• Do you have any side effects from doing the activity? Do you experience pain,

breathlessness, tiredness or stress and anxiety either during or after the activity?

"

Don’t overestimate your ability to do things.

If your condition varies, tell them what you are like on bad days as well as good days. The

healthcare professional’s opinion should not be based on a snapshot of your condition on

the day of the consultation; they should consider the effects of your condition over time.

make a diary: i.imgur.com/DithOgk.png

alternative diary: i.imgur.com/nEuPkxf.png

Source: disabilityrightsuk.org/site...

in reply to desquinn

Yea I agree

Bananas5 profile image
Bananas5

Not forgetting this.......

Considering reliability involves looking at whether the claimant can complete the activity as described:•

Safely –in a manner unlikely to cause harm to themselves or to another person, either during or after completion of the activity•To an acceptable standard•

Repeatedly –able to repeat the activity as often as is reasonably required•

In a reasonable time period –no more than twice as long as the maximum period that a non-disabled person would normally take to complete that activity.

x

in reply to Bananas5

Yea iagree

Iv suffered from fibromyalgia for over 18 years Last 7 years in the worse form of pain So I try to help in the best way I can some times it comes out wrong

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