Fibromyalgia Action UK
38,769 members51,035 posts

Constant bad days

His guys, haven't been on for a while been really rough, my bad days seem to be more frequent despite the meds and pain management ! My body as a mind of its own no matter what I do. When I go to the docs its just another tablet or take more,if come back to you guys because you are the only people who really understand, my pain as been really bad all over and the fibro fog is really bad as you can see by someone of the spelling. Just need advice from anyone who can help thanks Kim xx

5 Replies

I wish I could be of help.


Hi there really sorry to hear you so confused and finding it so difficult. I wish I could say fibro gets better but its on vary rare occasions . But what I do know it is some what manageable at times. The key is knowing all your conditions and managing these , what if I have several , well you gota prioritise on the one that gives you the most stress first then kinda filter through any more slowly and remember to go easy on yourself when there's nothing you can do about it . The pain management and fibro management should have some effect then. I have a lower lumber that is slowly crippling me slowly and despite what medics say this condition keeps me in a semi flare permanently . As for managing mine its difficult cause the condition keeps me in this permanent state.. .... I just do what I can and hope that people around me like family understand its not because im running out on life. I live alone and I do all my own house work slowly and pace it walk my dog twice a day and hope I have energy to visit my granddaughter and family as well but to tell the truth im starting to struggle with the last bit now. I use a mobility bike and walk only around my home or visits to family now. Well I wont go on to much, Im hoping that an insight to my life will leave you not feeling so alone with this invisible illness it can boggle the best or they would have found a cure by now. I hope you find door that will allow you some quality of life.

Love and blessing. fellow fibromite :/


hi royalspec, thankyou for your advice and support it really means a lot take care kim x

1 like

I am so genuinely sorry to read that and I sincerely hope that you can find the answers that you so desperately desire and deserve. I think that you have been given some wonderful advice so far, and I myself use a TENS Machine whenever the pain is getting too much.

It may also help to look at what medication you are being prescribed, and discuss with your GP / Medical Specialist about alternatives to these? I want to sincerely wish you all the best of luck.

I was wondering where you had gone? It is lovely to hear form you but I am so sorry it is under these circumstances. Please take care of yourself.

All my hopes and dreams for you



hi,thankyou for your support really means a lot take care kim x


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