Fibromyalgia Action UK
41,076 members53,187 posts

No help!

Yesterday after many years of 'strange' symptoms I was referred to a neurologist. He preformed several physical tests and said 'Do you know what fibromyalga is?' I told him that I only knew the name. He said that it was what I had and to Google it and I would be able to read all about it. He would write to my GP suggesting some tablets for me to take - then goodbye........and that was that!

Very helpful ............. NOT!

11 Replies
oldestnewest

He was more helpful than my neurologist! He didn't even seem to know anything about Fibromyalgia - he said he "didn't want to 'label me' " but was happy to send me away with some pills for the pain (that I didn't want!). All I wanted was to know what was causing all the pain! At least you have a diagnosis. I'm sorry that you've been feeling so poorly, but other doctors will be able to be more helpful, especially now that they know what it is you are dealing with.

3 likes
Reply

I don't think that the neurologist knew what fibromyalga was either, he just punched all of my symptoms into his computer and up popped the result.

4 likes
Reply

I'ts awful but so typical I'm afraid, a Doctor told me when I went to see him with pain in my neck/shoulders there was nothing he could do just keep taking the painkillers 😠

2 likes
Reply

Hi

It is very typical to be diagnosed, given a leaflet if you're lucky 😊 and then discharged!

At least you know what you are dealing with now and can start learning about the condition and how best to manage it.

We are all very unique and what works for one person will do nothing for another. It does take some time to find the right set of meds and help that you need.

Everyone here is very kind and compassionate and we all want to help each other. If you have any questions, ask away.

There are various things your GP can refer you for. For example: Pain Clinic, CBT (Cognitive Behavioural Therapy), Physio etc.

You could ask your GP to refer you to a Rheumatologist (they are the consultants that generally diagnose Fibromyalgia). Although as you have already had a diagnosis you may not feel that you need to see one. Something to discuss with your GP maybe?

Hugs

Lu xx

5 likes
Reply

Thanks to you all for your kind help and advice. At the moment I'm just so glad that I have at last been given a diagnoses.

I think that once you know what's wrong with you it makes you feel a bit better. It's the not knowing that is difficult to deal with.

4 likes
Reply

You can get some information sent to you and your doctor about fibro. The forms are on this site. Administration here can help with getting the information packet sent. Good luck and hugs.

1 like
Reply

After you google it, you will find description , symptoms and side effects . PRINT it out to remind yourself .

1 like
Reply

VPL22,

He (the neurologist) was obviously a well informed consultant.

It's easy to tell, as he had the ability to say FIBRO-MY- ALGIA so many Dr's seem incapable of getting the word out even after a positive diagnosis by a well informed consultant.

As me auld granny used to say "Dr's differ while the patients die",,,, of course she died almost 30 years ago, and without the aid of a Dr.

The thing that amazes me is with all the so called wondrous medical advancements many Dr's have not progressed in their bedside manner perhaps they don't need a bedside manner now as they seem to have a leaflet for everything !

Congratulations and welcome along

1 like
Reply

I had this experience from the rheumatologist who diagnosed me. I was told oh yes its fibromyalgia but thats the least of your worries! I have found out much more about fibro from this site than anywhere else. Thanks to the fibro lovelies on here I can get through each day. Joolz.x

1 like
Reply

Welcome to the forum and it is wonderful to make your acquaintance. I am so genuinely sorry to read this and I want to sincerely wish you all the best of luck with your medication.

All my hopes and dreams for you

Ken

Reply

At least now you have a name to go with the symptoms! Educate yourself by searching the Internet, I use google. Print out the info and keep it close to remind yourself of why you feel like you do.

Reply

You may also like...