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[seren1970]

Can anyone tell me do you ever get a break from pain anyone ever get a pain free day

[BlueMermaid3]

Hi there

I never ever get a break from pain. The only time I am not in pain is when I am asleep, which isn't very often!

Everyone with Fibromyalgia suffers very differently and have very different symptoms. Not everyone with Fibro experiences pain all the time or even every day.

I used to get good days, when my pain was barable and manageable but I don't get them anymore.

Hugs Lu xx

[seren1970 in reply to BlueMermaid3]

I'm the same always pain somewhere really gets me down but now I no that maybe the pain is here to stay I better just get used to it thank you I hope one day you will get some relief xx

[milo4 in reply to BlueMermaid3]

Hi Lu how are you?

SLEEP whats that lol

Trace😃x

[milo4 in reply to BlueMermaid3]

Hi LU I was in middle of sending message and I don't know what happened and it went don't know where that's these hands won't keep still

Trace😃x

[BlueMermaid3 in reply to milo4]

Hiya

I'm back at the GP tomorrow about my meds. Still trying to get something that works a bit better!

Looking forward to having my children home over the holidays. I love have them around.

How's things with you?

Lu xx

[milo4 in reply to BlueMermaid3]

Oh how lovely bet you miss them, I had my children young,so now have 4 grandchildren 2,3,4,12 that's what keeps me going.quite at moment daughter is on holiday,husband doing shopping.

I am ok just so tired I seem to nodd off when watching tv at night but can't sleep in bed lol.keep missing soaps lol.

Trace😊x

[BlueMermaid3 in reply to milo4]

I had my children late, but not by choice. I had dreadful trouble conceiving. Took ten years in all. My children are 15 & 18 and they keep me going.

I would have given up long ago if it wasn't for them.

It must be wonderful to have grandchildren

I try my hardest not to sleep during the day. I have enough trouble sleeping at night as it is.

I liked your line SLEEP what's that 😀

I seem to sleep in 2 hour shifts. Do you constantly wake up when you do get to sleep? I slept for 2 hours last night and am sure I must have woken up in pain at least 30 times xx

[milo4 in reply to BlueMermaid3]

That's funny I am the same I go to bed and sleep for 2 hours then just spend the rest of the night tossing and turning until I can't take no more and get up.

It's now getting to the stage were I am keeping my husband up as it is he has to help me out of bed I am 50

Feeling 80!!

Think I need a top up of painkillers in night.

Yes it's lovely having grandchildren just wish I could have them stay like I did the eldest one but its to much.

I had more energy on chemo.but I am here!!😃x

[BlueMermaid3 in reply to milo4]

I feel ancient too and I'm 54. More like 154

xx

[milo4]

Hi I can't talk for everyone but I personally never have a pain free day

But I am still trying different tablets. I think some people have flare ups.

But mine are all the time just some days better than others.and if I over do things I pay for it the next day!

Hope you get yours sorted,are you on any meds?

Trace😃

[seren1970]

That seems to be what's happening to me I'm on cocodamol 30mg pregabalin 75mg twice a day and amitriptyline 10mg one at night x

[BlueMermaid3 in reply to seren1970]

Mindfulness is an amazing thing to try to master.

How long have you been on the Amitryptyline? You are on a very low dose, so you could speak to your GP about upping it. Might help with the pain as well as sleep xx

[seren1970 in reply to BlueMermaid3]

Doctor has doubled pregabalin and amitriptyline got to give that ago then go back let her no how I go x

[BlueMermaid3 in reply to seren1970]

Fingers crossed then for you. I really hope that helps with your pain and sleep.

The Gabapentin is very good. I didn't think it was working until I tried changing to Pregabalin recently.

I couldn't cope with the pain during the change over so went back to the Gabapentin

xx

[seren1970 in reply to BlueMermaid3]

I was on gabapentin last year after being in hospital for

A week they did every test going found nothing they made my legs cramp so I stopped them you think then they would of realised it was fibromyalgia xx

[BlueMermaid3 in reply to seren1970]

It took 30 years for me to finally get my formal diagnosis. I was told all that time that my pain was depression, even though I kept saying depression cannot possibly be this painful.

Fibro is incredibly hard to diagnose because of the large number of different symptoms there are.

I know a lot of people here have not been diagnosed for decades.

The only actual diagnosis that can be done is to have the Tender Points tested xx

[stumpedok]

You might like to have a look at the live Post 'Mindfulness' by tonieevans82. ...Help doesn't always need to come in the shape of a tablet.....deep relaxation, distraction etc can be powerful weapons in subduing pain.

[Regnofibro1]

Honestly I have never known a day without pain. Several of us have more than just Fibro. Sometimes I feel as if I spend most of my day trying very hard to do the little things. The rest in bed fighting the pain from trying to do the little things. As far as sleep goes a good night is only getting up 5 or 6 times to try and get the pain in my legs to ease up. I don't think I have ever slept more than 2 hours at a time. My problem is I really don't hit REM sleep cycle very often. When I do I stop breathing and wake my self up. Try the whole sleep study and that didn't work out because I don't hit REM very much. So fatigue is part of my daily life. I feel for so many that have to deal with fibro and other issues. I know really don't know anyone that has just fibro. Hugs

[TheAuthor]

I cannot honestly say that I have ever had a day without pain since before my diagnosis but the severity of the pain alternates from day to day.

I want to genuinely and sincerely wish you all the best of luck.

All my hopes and dreams for you

Ken

[Willow51]

Hi Seren, like a lot of others on here, I have days when the pain is mild-ish to severe on other days. It is just getting to know what days I can do something without suffering badly the following day. Getting to know your own pain tolerance is good, and when you have a good day, don't go mad and try to do too much, we've all made that mistake at some time. Hugs Lindax

[seren1970 in reply to Willow51]

Thanks it's such a horrible illness I didn't think I would be slowing down at 45 thank god I had my children young all 4 are grown up not sure if I would have the energy for little ones every day oh yeah my granddaughter is seren I'm della x

[Willow51 in reply to seren1970]

Hi Della , I use my granddaughter's name for stuff as well. Hugs Linda x

[Peace2014]

Hi, I was diagnosed with fibro last year. I do have pain free days. I find when I get up in the morning my joints are stiff and I have to warm my hands in water to get them to move freely. It feels more like I have over exercised as I used to be very fit. I have to pace myself now and rest as soon as I realise that I am slowing down by swapping what I do - washing-up - standing, but sit to iron etc. I do mindfulness which I find helpful as it helps me to relax when i go to bed. Everyone who I have met with fibro has different symptoms, but the single core seems to be that we cannot do what we did before and have to learn to pace what we do and be kind to ourselves.

[seren1970]

Thanks for reply my hands were like that but since being on tablets it has calmed down it's my legs and ankles what are hurting at the moment had a really busy day with work so prob pay for it tomorrow got my granddaughter tomorrow afternoon then going to Brighton on Saturday so I no already I'm going to pay for this next week