general: hi hows everyone today as well... - Fibromyalgia Acti...

Fibromyalgia Action UK

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general

12 Replies

hi hows everyone today as well as can be expected I hope.im ok just very tired,still in pain and lost my appetite.went to morrisons this morning paniced when got to checkout,my eyes went really blurred and couldn't see well,was trying to get my money out to pay,the lady on he till was very nice,just want to get home.glad to be in house again so scary.

12 Replies
Manu2015 profile image
Manu2015

Hello molind awwww I'm sorry to hear your troubles do u take anything for the pain and do u have anyone u can talk to about this cos telling someone mighf help matthew

in reply to Manu2015

hi thanks for your message.yes im on morphine and amytriptolyne.my care coordinator came today,brought me some info,she sorting out some support for me,and my daughter helps when she can as she works and has two youngsters.i can do some things in house but its really getting harder,but im at pain clinic on 2nd September and physio on 13th august.so see what happens then.my pain relief not helping.my gp gave me a cream yesterday,be carefull with it he said as made from chillies.put it on my knees and back.never even felt it and didn't relieve pain.take care

Manu2015 profile image
Manu2015 in reply to

Hello molind that's gd that your getting help nw and that your daughter helps u I recently changed my diet cos some of the food and drink I was having was causing flare ups with my fibro things are hard at work at the mo cos of fibro and nw they bring in finger sanners but I may not be able to use them cos I've got a history of eplisply and the luster may make it return but will have to see what happens next week when I speak to my doc and get asacied at work but I will keep fighting and have the best life that I cam and if u ever need any advice I'm here to help matthew

Regnofibro1 profile image
Regnofibro1

You might need to get some help doing things around the house or grocery shopping.

in reply to Regnofibro1

my daughter helps when she can and my social worker sorting out support at home

Betty67 profile image
Betty67

Sorry to hear this. Don't let it stop you in the future but think about internet shopping and a good store cupboard . I always keep some replacement meal drinks in for when I can't shop or cook but need to eat. Better than some things.

Gentle hugs

Poppy-poppy profile image
Poppy-poppy

Hi, really sorry that you had a terrible experience at the tills and now feel better and that your appetite has come back because you need all your strength to fight this terrible illness and when we fight it with all of our might we only stand still because we know that if we do just that tad too much we will pay doubly for that with extreme pain and fatigue all over our bodies so please eat and try to put that awful experience behind you and fight this horrible Fibro with all your might and try to have a happy life. Best wishes

in reply to Poppy-poppy

I will do but its hard every day

TheAuthor profile image
TheAuthor

I am so genuinely sorry to read of your awful experience whilst out shopping and I want to sincerely wish you all the best of luck for when you go shopping again.

Please do not be afraid to go out as this can lead to other issues arising, I was wondering if you had a friend or family member that could go with you next time until you regain your confidence?

All my hopes and dreams for you

Ken

godsgrace60 profile image
godsgrace60

sorry to read you are struggling so much

hi im ok still very sore got a bit sleep.just so hard when moving about.be glad when I see physio on 13th august.also got pain clinic on 2nd September.i keep crying but im trying to keep going,think pain and frustration brings on the tears.and get very tired.take care.

Big hugs to you I am in same position just now .... Hate leaving house and everyone scares me to death by just being visible .... Xxx

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