Hi had to visit job center monday while there became quite ill not been feeling great for a while on Saturday had been getting cracked vision again like looking through a broken screen with strobing colours along lines then later brown blobs! plus shading to left high like having a blind on.been getting weird things in eyes for quite sometime but not so much in a short time.
Didn't feel great either breathing was poor as so out of breath for nothing there days and coccyx has become quite a problem. did sit down at pc sat evening got up and lost my balance ending up falling over things.
On sunday friends said your not the same person that they know.
So on monday got there they kept me waiting 45 mins too was trying to take pressure on coccyx as so numbing feet kept getting tingles using inhaler to try to help breathing but was keeping fast but like shallow then got this thing like an outline of an island in vision with flashing colours then in end called me managed to make my way over and vision changed to like a waterfall of colours going down side of vision sort of sat down hes starting to say something but looked distant but in two focal distances so sort of double.
I was getting this very bad feelings in face/head/body then said i'm not being funny but think i need an ambulance as could feel it getting worse becoming quite nauseous things becoming numbing loosing senses/balance etc? they rang 999 messed about with G4s monkey dithering in the end they didn't want to send ambulance said ring 111/call quack!
DWP john said he'd make me an appointment for next week! managed to sort of get up but couldn't walk properly just about got door open lent over rail outside for while trying to sort myself out then got a bit further then it became too much and collapsed the world went haywire everything was going numb with like pins n needles all my face was like at dentist with pins n needles going round nose/cheek area.
police must have been close as they arrived sat me up and supported me
Paramedic came was asking me questions but i couldn't speak properly everything was slurred finished up couldn't move arms&legs as said move my toes but nothing happened they lifted arms but couldn't keep up while doing stats(My bp was very high for me)remember he was saying his wife has fibro too and what it had done to her to me and police and said this is more like CFS and said about yuppie flu and said body just has nothing left to give!
In the end the ambulance turned up but i couldn't stand up but got me on stretched in end.
A&E did checks in the end doc said didn't think was a stroke as had rang S consultant
I said but while was on floor they said(Think was police)my face kept dropping there words doc said not in notes!
My quack thinks it was like a panic/stress attack with high co2 levels?
But just been checking something out and comes back as a TIA as even after and next day was still getting tingles on face and now still my face is completely numb as have no feelings on cheeks/mouth.
Someone i know from other place that has fibro was talking about Small fiber neuropathy and said quite common with us which explains hand etc problems.
one other thing came back was if have another tumor Trigger something? as linked back to numbness and others is loosing hearing in ear which have found recently.balance/loosing senses like smell/taste/change in moods which have as find very unpredictable as like once want to go home just want to push anyone out of way etc.and quite a few other things ive noticed now but back to Endo for a rescan soon so will maybe know more then.
But it was a scary situation not knowing what was going on and felt so helpless
but the Ambulance was a total joke didn't even have oxygen and i'm sure if it had been worse i wouldn't be here know that i'm very sure of.
One odd things somethings like a thought was so crystal clear while everything else was a jumble/blur but have lost memory of last week but picking bits back up by diary/calendar/cross referencing etc
Already had an appointment with CA type place near me lady checked my stats and said i don't need to go to these interviews anyway and shouldn't be bothering me did write me a nice letter to show my doctor to write to them and said if they won't do come back and we will do for you started my PIP thing as said with what you are going through are entitled to(was never sure)
My doctor moaned about writing to them said if did for all his patients would never leave here! but said he will do for me and going to sort my blue badge application out which was nice of him as felt a good help.
but one thing came back as my friend whose been in Thailand since end of last year now say's he can really see a change in my health!