? mini stroke

[mo1mo2]

Have had weakness and lack of coordination in rt arm 2 weeks. Was seen in casualty and had cat scan. Freaked out as got it in my head I got MND (motor neurone disease) Am now down for MRI of head and neck . Could fibro be making me feel this bad

Maureen

[jellynpain]

Hi,

I had a sudden event where within a minute I went from fully physically able to unable total immobile. Hospitalised and mobility slowly regained but never totally.

Since then diagnosed CFS/ME/FM and a few other things found.

Had all MRI's, Ct's etc and on going tests over last 3+ years.

My mobility is difficult, weakness, numbness, ataxia, tingling and slot more. I also have spinal issues but nhs won't consider to what happened.

I always wondered if a mini stroke but they said no.

One thing I wish they'd done was an LP, horrid but could eliminate alot.

Shortened version or you'd fall asleep.

Good luck xx

[Lottieonline in reply to jellynpain]

So similar to me, now awaiting for MRI of brain and spinal block area. Might be followed up with lumber puncture. Consultant is thinking M.S. He told me this as my pupils are not even and eyes are uneven too. I had mentioned this many times but I was told I'm imagining IT.

As soon as I have results I will report the findings.

[mo1mo2 in reply to Lottieonline]

Thanks for reply This been an ongoing thing . Seems no one wants to commit in the NHS

Maureen

[Lottieonline in reply to mo1mo2]

I agree, I'm in so much pain I cry with the pain and now they think it might be MS I don't care about the title just help me with the pain! Gentle hugs

[TheAuthor]

Hi mo1mo2

I am so sorry to read that you have experienced this, and I genuinely hope that you can find some resolution and relief to these issues. I sincerely hope that your MRI goes well for you. I have not personalty had this sort of experience for m my Fibro, but that does not mean that it doesn't happen?

As for Motor Neurone Disease, it takes years for the onset to come on and it works very slowly so please do not worry that you have this, as it is unlikely. I want to wish you all the best of luck.

Good luck

Ken

[agtf1]

Hi, sorry to hear you are having these problems and are understandably scared and concerned.

I don't know anything about MND, but I frequently have this with right leg - numbness/no feeling in muscle, not responding when u want it to move etc, this I have had for 3yrs and been told is down to Fibro (I've had MRIs etc ruling out anything else, ie MS). I've also had numbness down right side of body & loss of vision on same side, which I feared was mini stroke, but was diagnosed in hospital as ocular migraine. So please don't panic, it is possible it could be Fibro.

It sounds like you are in the right place & they are doing everything to find a reason for your symptoms.

I hope you get some answers & some relief soon xxx

[Lesley61]

I lost the use of my left leg in December and stabbing pains in my head and eye could not see for a bit I had a stroke in February lazy year so I also was think it was a stroke I whent to hospital they keep me in put me on acute ward had all test the sed it was all sings of a strok but they did not know wot it was and still don't know wot it is all test come back fine Iv got APS got DN and OT and physio coming to my home Iv got the felling back and can walk with aid but have lots of pian with it this week the only time Iv been sort of pain free hope u get better soon x

[achydunlin]

I find this really interesting as I had similar symptoms - numbness, tingling, blurry vision, balance problems, pins and needles (I still have some of the symptoms but my vision is better and they're still doing tests) and they suspected a mini stroke and then MS. All ruled out by MRIs of the head and neck and also a spinal tap - the results of which I'm still trying to get to the bottom of.

Have they ruled out a vitamin deficiency? I was very low in vitamin D which was probably making me feel worse - although the levels are back up and I feel not much better! But I've spoken to several people who have had vit D and B12 deficiency and they had the same symptoms.

Hope you get sorted. Please remember though MND is actually very very rare. x

[mo1mo2]

Thanks for replies on possible MND. This has been happening slowly so concerned. Seems for ever to get the hold of a good consultant none of them want to commit to anything. Had holiday booked for Easter ,now seems a dream.

Maureen