Trace

Hi I was diagnosed with fibromyalgia a few months ago after battling stage 3 aggressive breast cancer with 23/24 lymph nodes positive. After a mastectomy,lymph nodes removed,chemotherapy,radiotherapy,helpline for a year I thought yes I've beaten it, I started getting dizziness,pains in my ankle,knees and wrists,shoulder and all over body pain.and now been told its fibromyalgia. Just wanted to know has anyone else been diagnosed with fibromyalgia after cancer.

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  • Hello milo

    I just wanted to wish you a warm welcome to our kind caring forum.

    I am so sorry to hear about everything you have been through over the last year.

    I have not experienced the same as you, but I wanted to say hello.

    Look forward to chatting with you again.

    Hugs

    Lu xx

  • Thanks lu I have never used a laptop before new to all of this lol and think I might of put name in wrong place it's trace never to old at fifty my children told me so I thought I would give it ago,

  • Good for you Trace!

    If you need any help navigating the site, give me a shout. I used to support IT lessons and have been using a computer since 1984 . Eeeek! That makes me sound so old :)

    Personally, I find this forum a Godsend. I have been a member for over 3 years and have learnt more about my condition and tips to help than from anywhere else.

  • Welcome to the forum and it is wonderful to make your acquaintance. I genuinely hope that you find the forum useful, informative and loads of fun! I want to sincerely wish you all the best of luck.

    All my hopes and dreams for you

    Ken

  • Thanks Ken already so glad to have found this site it's nice to know I am not alone and not going mad

  • I had already been managing fibromyalgia for more than 15 years when I had a cancer diagnosis in 2007. Up until that point I had been able to manage flare ups and found the condition would settle down. After successful chemo treatment it spiralled out of control and I found myself experiencing many new symptoms and pain at a level I had not previously experienced.

    I was fortunate enough to be referred to a Pain Management clinic which was very helpful but having returned to work i struggled on until 18 months ago I reluctantly accepted early retirement on health grounds.

    Now my life is very different and I did initially struggle to accept and adapt to pace myself (sometimes successfully sometimes not) but I am glad to still be here and thankful for my good days my family and friends.

    This site was a lifeline during my darker days, informative and supportive. I hope you find so too. If there is a local support group nearby you may find them helpful too.

    Sending you a hug and blanket of positivity to wrap yourself up in.

  • Thank you so much! It's nice to find a site where I can talk with other people who have the same condition.I never had this before my cancer held down two jobs now the pain is so bad I find it hard to walk and can't sleep.but I just keep telling myself at least it's not the c word! Every cloud... I feel the same just glad to be here. I have a wonderful husband 4 great children and 4 lovely grandchildren. Just wish I could look after them more😢 hope today is one of your good days😃

  • Yes me, I had breast cancer in 2005 (lumpectomy), again in 2011 (had both breasts removed, expanders and reconstruction), now on yearly checks. My fibro was diagnosed in August 2011 after pain all over my body just like you! Doc said it was the trauma of the cancer that bought it all on. Do hope your feeling better now and wish you all the best for the future....ps we CAN beat this!! Xx

  • Hi thanks I was diagnosed in 2011 just had my reconstruction may going back Tuesday. Kept asking doctors but they won't admit it. Diagnosed with fibromyalgia a couple of months ago. And you're right WE CAN BEAT THIS!

  • Yep! Had Lumpectomy x 2, chemo, rads and Herceptin for a year still on arimidex for another year. It was four years ago and I just kept thinking it's the chemo for ages as brain couldn't focus then was sent to rheumatologist who diagnosed Fibro last year! It was so hard to see where one came in and the other left, I thought I was going mad and the pain has crept on and like you I have days where I can't move and then I do the silly thing when I have a better day I try to do too much and it sets me back again. I chatted to my lymphodema nurse who told me several of his ladies have Fibro after cancer so we aren't alone! I just wish I had known earlier then I wouldn't have spent so much time beating myself up for taking so much time to recover!! I was diagnosed at just turned 57 and I haven't been able to work since which frustrates me so much as I too had a full time job + a part time one evenings but I now think hey at least I am still here and grateful for that just wish I had known more about Fibro as it was just a word I heard from time to time with no understanding of what it really meant! So lovely no you're not alone but hell we will beat it 😄 gentle hug x

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