After years of backwards and forwards to my GP with numerous aches and pains to which I have never really gotten an answer, today I have been tentatively diagnosed with fibromyalgia. I have read a little about it as so many of my symptoms seem to fit - the main one being tenderness and a feeling of being bruised. I also suffer with extreme stiffness after activity and first thing in the morning, upper spine pain, random muscle aches, swelling in my clavicle lymph nodes, trouble sleeping... I'm 45 and feel like 75... The pain and stiffness I get following any activity is having a really negative impact on my everyday life. I'm missing out on such a lot as I either haven't the strength to do it in the first place or know that I wil suffer afterwards.
So, anyway, I have finally found a lovely GP after years of seeing different doctors who seems to have joined the dots of all my aches and pains and is sending me to see a rheumatologist.
The appointment won't be for 2/3 months and we've decided to hold off on any medications until I've been seen.
I have a few questions though and wondered if anyone on here would mind helping?
1. I don't have fatigue at all - yes, I have trouble dropping off and am often awake until well in to the early hours but I don't feel tired. This is worrying as I was under the impression fatigue was a prime symptom of fibro. Can you have fibro without fatigue?
2. Nothing touches the aches and pains. I've tried paracetamol, ibuprofen (gel and tablets) and codeine. I permanently have a hot water bottle somewhere about my person!! 😆 If I'm totally stiff after activity, a hot bath helps. Why do no over the counter painkillers help?
3. Will I ever be physically fit again? I'm only 45. I have a young son. I want to play football with him. I want to do a Pretty Muddy obstacle course. I want to climb Snowden!! My mind is willing but my body says 'no chance!'.
4. Swollen lymph nodes - I've had them scanned and everything looked fine but it's freaking me out in case it's something sinister. They can literally be swollen one minute and gone the next, or I can have hours/days of swelling then days when they seem perfectly fine. Anyone had this at all?
5. Can fibro pain be stationary? I've had a tender spot below my bottom right rib for over a year. An ache spreads into my rib cage. I've had 2 scans and an X-ray - nothing!! So is this fibro as I expected the pain of FM to be more mobile?
Thank you SO MUCH for taking the time to read all this!!
Ps. I also have under active thyroid and have been through early menopause. My GP says that hormones often play a part in FM so that all adds up in a way xx