Is anyone being treated with out medi... - Fibromyalgia Acti...

Fibromyalgia Action UK

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Is anyone being treated with out medication?

Hols15 profile image
16 Replies

I have been to the hospital today and was finally diagnosed with fibromyalgia after over 2 years fighting with my gp. Was told today that I was in the right place as the hospital I go to have a fibromyalgia department where I will be seen from now on. But I was also told that as I'm only 26 they will not treat it with meds is this normal?

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Hols15 profile image
Hols15
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16 Replies
Riles-17 profile image
Riles-17

Hi hold you are very lucky to have a fibro dep at your hosp. I think every one is different. And are Ll at diff stages. When I was diagnosed I was already taking the meds, I think my GP had an idea just needed rheumy to confirm. Maybe this is something you need to discuss, depending on your pain and mobility. Good luck .xx hope you get the best treatment you need.

ladytelita profile image
ladytelita

Wow! An actual department!

There are other ways of treating fibro, such as cognitive behavioural therapy, physio can help and a number of other approaches too. If this works for you then fantastic, it's got tobe better than shoving ever more pills down your throat which can have some alarming side effects. If, however, you are in pain and/or not sleeping, then you may need some extra help. Sometimes you can get by with over the counter medication and heat pads etc to keep it in check, sometimes not so much, which is when you need the gp to be on your side.

Another reason they may not want to give you medication is because of your age and the possibilty of you wanting a child? You can't take lots of medication without it having a negative impact on your chances of concieving or carrying a child to term without health implications for you or your baby. I suspect that is the main reason.

P.

haribo36 profile image
haribo36 in reply to ladytelita

I was taking a lot of meds when I was pregnant.I was told that apart from one of the meds I could carry on taking them but had to reduce the dose ages.Both me and my child who is five now suffered no health implications.The pain management team told me that my baby would be fine despite taking the meds I was on.Just thought I would share that as it's not always the case that taking meds can have a negative impact on what you have said ladytelita x

Hols15 profile image
Hols15

Thank you for your replies. I was very surprised to hear that the hospital has this type of service and at the moment and willing to give anything ago. This has taken over my life for over 2 years now so am pleased to finally be getting somewhere hopefully it will mean I can start enjoying things now x

haribo36 profile image
haribo36

Hi there,I can't understand why being 26 has anything to do with not being treated with meds.If you have pain,sleep problems etc then medications should be prescribed to help ease your symptoms x

Hols15 profile image
Hols15 in reply to haribo36

I did think that but maybe the fibromyalgia doctor will give me meds. X

Hols15 profile image
Hols15

London Guy's hospital

haribo36 profile image
haribo36 in reply to Hols15

I asked to be referred there a few years back as they have a fm/me clinic.They were really helpful there x

charlie_red profile image
charlie_red

Hello :) I'm 23 & on quite a lot of medication for pain and sleep. The clinic should be able to give you a few options x

Hols15 profile image
Hols15 in reply to charlie_red

I hope so. The fatigue and pain are the worse. X

charlie_red profile image
charlie_red in reply to Hols15

Send me a message if you fancy a chat, were just about the same age :) would be good to tall to another young person to find out how the cope.

C x

charlie_red profile image
charlie_red in reply to charlie_red

I mean talk haha :)

Racket profile image
Racket

I'm 21 and I'm on meds so age should not be a problem. If your in pain they should give you meds xx

Zosie profile image
Zosie

Hey Hols, just seen your post. I am 27 and have been on amitriptelyne since I was 25. I've not heard of an adult being too young for meds. Take care xxoxo

Hols15 profile image
Hols15

Thank you. I am on amitriptyline but the doc said this is the last time his giving it to me as the hospital need to treat me xx

lindyloub profile image
lindyloub

I take a load of different vitamins I had just lost 3 stone in weight & it cost a lot of money buying new clothes so I learnt on Facebook about lots of different vitamins but I do take a mix of paracetamol & codeine when I get pain most of my pain is in my knees I use Hemp gel its works immediately for me but we are all different it took me 2 years of different vitamins & plant based products I had some physio exercises when I fist had it as I as as stiff as a wooden soldier had to exercise in bed to get out & then some gentle exercise but now its very rare I get that stiff but I do get flares. I very much pace everything I do otherwise its pay back time I was diagnosed with Fibromyalgia because 1 week of taking gabeltine took the pain away no I do my own thing its very expensive & I hate having to take so many pills but its proof its possiable. I am retired can take it easy when I want or have a duvet day

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