I am not so proactive in writing a post as my condition getting horrendous each day and unable to sit for a lengthy time, however I read your news each day, I have never heard any one suffering from Chiari 1 Malformations, as the specialists thought it was my FM/CFS which keep giving me constant migraine (headache).., but after being passed and stayed at the hospital for over 3 weeks and have had another brain tested, they told me that I have Chiari 1 malformations, no wonder drugs treatment just did not have effect on me at all. I am now taking no drugs at all, so can you imagine the excruciating pain I face on daily basis.
I just wondering if you know some one or have had experiences with what I have got , can you please share with me and let me know how do yo cope with it?
Thank you
B
Written by
B2WC
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I am so very sorry to read that you are not on any medications now and that you are suffering and struggling so much. I genuinely cannot remember if I gave you the NHS Choices cache on this last time? So I have pasted it below as it discusses treatments further down the page:
Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.
Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.