Fibromyalgia Action UK
38,760 members51,018 posts

Out of control

Hi everyone

Today is a rough day for me the pain is out of control my hands, feet and lower legs are swelling and none of my meds are helping with my pain. The doctors are sending me for sleep study telling me this could be causing my problems. Does anyone know if this is true. I have been having chronic pain n fibro for 14 years and I have no life anymore.

5 Replies

I do not know if this could be true or not? However, I have Fibro and suffer with severe pain on a daily basis. I have also suffered with a sleep disorder (insomnia) for most of my adult life. I have just undergone yet another sleep study myself as I have not slept during the previous studies.

I will say that I personally believe that more research is needed by the medical profession into all aspects of sleep related illnesses and disorders, not to mention Fibro! I want to genuinely and sincerely wish you all the best of luck with your sleep study.

All my hopes and dreams for you


1 like

I also have pain numbness and

tingling in my feet , legs, and

hands. I was diagnosed 13 years

ago I've lost jobs, and endured

Family, friends and others comments. This is a lonely

illness. I don't think the drs know

what to give us. The one thing

I found helped is therapeutic message when I'm in a lot of

pain. I hope this helped you X


I totally understand how you feel. It is so frustrating to be in so much pain and receive no relief from medications.

I have been told many times by my doctors that good restorative sleep is vital for fibro. However, we get into a vicious cycle of pain that interrupts sleep which causes more pain.

I had a sleep study this spring & now use a CPAP - when I can sleep. However, having bipolar, I go 36-60 hours without sleep at least once a week. On the nights I do sleep, I get 3-4 hours because of pain keeping me awake, 6 hours on rare occasions. Needless to say, that is NOT good restorative sleep.

Having said all that, I see nothing wrong with having a sleep study. Your doctors may find something that will help you to sleep a little better, which will hopefully help reduce your pain some.

I wish there was a simple answer for all of us in reducing our pain. I'm sure you have learned by now to pace yourself & get as much rest as you can. Let us know how things go.


I know what u are talking about I lost all of our friends after I got ill and my children don't come to see me. I guess if they don't see me with these problems then in their mind I am fine. This illness is a very lonely world someday. But my goal in life is to do things I love to do and I am blessed to have a husband who sticks around even when I am not a nice person when my pain is out of control.


I have swelling in my feet and I have a pinched nerve in my lower back.


You may also like...