Please point me in the right direction - Fibromyalgia Acti...

Fibromyalgia Action UK

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Please point me in the right direction

Mares46 profile image
5 Replies

Since the age of 13 I've suffered debilitating pains throughout my body. Back then it was (early 80's) it was put down as 'Growing Pains!' I now know that to be complete rubbish.

Six years ago I was diagnosed with having Schuermann Disease from early teens, along with arthritis and Fibro. I have a few ailments, Depression, Gastritis, IBS, Chronic Fatigue, Primary Biliary Cirrhosis to name a few. Feel like I'm the oldest 40 something ever known.

I try to keep my humour and as you probably know it's not always easy to remain positive. Hence why my search has led to your group.

I would appreciate any information on meetings etc you could throw my way to help me to remain mobile, independent and positive.

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Mares46 profile image
Mares46
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5 Replies
hamble99b profile image
hamble99b

hi Mares46 and welcome!

I was told "growing pains" in the 1960's! :-O

Thankfully/hopefully they've wisened up now :)

regards,

hamble.

Mdaisy profile image
Mdaisy

Hello Mares46,

Welcome to the FibroAction Community! :)

Gosh, sounds like your journey to diagnosis was not only long but fairly complex with these other conditions to contend with. Hope you have a good GP and get the healthcare you need now. I had a family member who was told growing pains for years and it wasn't until they saw a younger GP it was investigated much more fully, it seems older Doctors used to say this quite often!

Would it be OK if I post a link to Schuermann disease?, as I'm sure like myself most of the community will not have heard of this condition

Please can I provide you to a link to our website about independent Support Groups for Fibro;

fibroaction-public.sharepoi...

I hope you find one in your area, if not you may find someone here from your area that might know of group near you.

Wishing you all the best

Emma :)

FibroAction Administrator

Mares46 profile image
Mares46 in reply toMdaisy

Hi Emma, thanks so much. Will check out the link :)

Any other links etc that maybe of help please don't hesitate to send my way :)

Mdaisy profile image
Mdaisy in reply toMares46

Will do :)

unio06 profile image
unio06

I too was told growing pains in the 80s and was diagnosed with FM in 2005 at 29 years of age. I was a care assistant for the elderly and lost my job because of it. I'm trying to get back into work but it's hard but my family and my furbabies, 3 dog's and 1 cat keep me on my toes

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