How to treat the dull aching pains? My arm all day with sore elbows and knees cracking bones...etc just been diagnosed at 40 jhs

[diddles1]

Always knew from a young age I was doubled jointed suffered dull aches leg pains to name a few but at 40 at last diagnosed with joint hypermobility still waiting on results of other tests but the last few yrs I knew my body was changing also being through early menopause at 33 this felt like systoms I had at childhood but more severe I was prone to fainting/ fatigue aching limbs to name a few but this dull aching pain so annoying and painkillers just dont help anyone know if anything else that does.

[diddles1]

Hopefully I get a reply just a new member hopefully finds this site helpful!

[TheAuthor]

Hi diddles1

I sincerely hope that you are feeling as well as you possibly can be today? May I welcome you to the forum and I really hope that you find it as useful as I do?

I am so sorry to read that you have suffered with all these problems for so many years, and I genuinely hope that you can find some relief and resolution to these issues.

When you say that pain killers do not work anymore, I was wondering which are the pain killers that you meant? Where you referring to the type of pain killers that Fibro sufferers take such Gabapentin, Pregabalin, Amitriptyline etc? Or something else? i.e. paracetamol, ibuprofen etc.

I was also wondering what medication you have been prescribed by your GP? Also, have you been given a referral to a Pain Management Clinic or Rheumatology? Most members will have used / are using a service of this nature to help establish which medications are most suitable for them.

I have pasted below the FibroAction Website link which has lots of information that you may find useful and help answer your questions:

fibroaction.org

If you have not been prescribed anything or have no referrals anywhere, it would probably be best to start off with another visit to your GP.

All my hopes and dreams for you

Ken

[fenbadger]

Welcome indeed. Please do look at Ken's link. There's a lot of useful information there including an article about how fibro sufferers respond to painkillers. It seems some, if not all, have different opioid receptors. I'm writing this after being fully dosed up at bedtime with paracetamol, codeine (which is a mild opiate) and amitriptyline. Should be totally zonked. Hm. Why is that a word and paracetamol is not?

It will surely be prescription drugs for you and may take some time to find a system that suits you, but don't give up. Do speak to your GP and see if they're "fibro friendly".

Please come back to the board for more help/support. Ask questions or just have a moan. You're entitled. A pure moanfest is destructive but at times we need to let off steam. I note the time you posted. There's nearly always someone awake (you've already had 2 replies!)

[Lucyhobbit]

The aching is by far one of the biggest pains in the derriere for me (well other areas too ). I tend to use a wheat-filled heat pack, heated plasters (heat is a recurring theme for me) and sometimes I'll put a support on it - as I often find holding something in place helps ease the ache. I also try to distract myself with something I find absorbing, but that doesn't always work. *gentle hugs* for you

[Ginsing]

Morning Diddles,

Welcome to our site we are a traffic group of marvelous nutters, I think we need to be a little nutty to actually learn to live with the pain we get. There is always someone on hand to let loose to and it really helps an if you dont want to go "public" you are welcome to send me a PM and we can have a chat.

Please in your search for help on pain killers, or how to fill forms into the best advantage go to fibroaction.org help i at hand as you will see.

I am so sorry you are having a rough time with pain at the moment which pain killers are you prescribed? Perhaps it is time for a review of your meds with your doctor. Please do remember that any hing suggested on here is from personal experience and we strongly advise you visit your own GP for professional advice .

We are having a virtual coach trip on Sunday to sort out which way a scone should be covered jam first or cream,

I am not sure what time but fenbadger is organising it for us please feel freeto join in.

I see you are already using distraction techniques and we are all great believers in that looking forward to your posts hoping you will have a good day.

Keep smiling

xgins

[Hidden]

Hi and welcome to the site diddles

Both Ken and gins have given you the FibroAction website link which is a useful place with a wealth of information. If you need answers about, doctors or even medicines, alternative medicines there are sections on the fibroaction site if you hit the link given above. You'll also find sections about all the categories that are there on the right of the screen which is where you can browse through peoples posts.

Can I ask what medications are you currently taking? and do you use pain gels as well?

I also have hypermobility, diagnosed at 39 last year, alongside Fibro and like you find the aches irritating and persistent. I personally suggest a chat with your GP about this and how you can both work together on finding the right combination of medications and treatments for you. This link takes you to the FAQ - My current medication doesn't seem to be working, what treatments are recommended for Fibro?

healthunlocked.com/fibroact...

You have come to the right place for information, friendly advise and fun if you feel up to it, we all like to blow off steam whether its with a moan or a giggle so please don't be afraid to join in

The creative corner and comedy corner are quite popular as having a good laugh is good medicine. There is also a newly added Pet's Corner for us to post our beloved animals that are there for comfort and support.

We do have our serious sides too and are here to help and support if we can looking forward to seeing you around and please don't be afraid to ask any Q's

xxxsianxxx

[solowheelie]

perhaps you need to try different pain meds or combinations of them - i take a combination of 4 meds which is much better controlled than when i only had 1

[diddles1]

Thanks for all the help really useful im just taking naproxen iburofen paracetol sleeping pills and of course hrt as waiting on further tests from the rheumotologist to get on the right meds for me and have to wait to see what exercises I can do to help build muscles should only be a few weeks now but as you all prob know the waiting around brings on the frustration which does, nt help my well being... but on a brighter note had a great sleep last night 1st time in days so having a gd day so far and all your messages brought a smile to my face and a few gigles so thanks for that!!! Big hugs to u all xxx

[Cookie72 in reply to diddles1]

Hi there diddles welcome to our wonderful, caring, sharing, loving, laughter fibro club, it's a great site to belong to you couldn't have chosen a better site, do come on the virtual coach trip tomorrow ....look forward to reading your posts ....gentle hug for you....Dee xx

[loppyloo61]

Hi Diddles 1, Welcome to this wonderful Site. I am so sorry to hear you are experiencing dreadful pain/discomfort and having difficulties getting you Medication sorted out.

They are a brilliant bunch of people on this Site, who have helped, supported me, the kindness, care and invaluable advise I have received since joining, not so long ago is incredible. I have learnt more from this Site in the past few months than I have in all the years I have had ME/CFS/Fibro. I too have a Hyper-mobility Syndrome but is a separate issue from Fibro. Mine is a rare genetic syndrome I have sadly passed on to my son who is completely disabled with condition.

I hope they can sort your pain-relief meds when you have the results back from your Ruematologist. Are you waiting to go to Pain Management Course, this is something that can be extremely helpful if you are well enough to attend it?

I am on a "cocktail" of medication, M.S.T., Pregablin, Amytriptylline, Paracetamol, I find the Lidnocaine Patches that you apply to the most effective area of pain, like my hip I have bursitis of hips and slipped discs in my spine, Patches work but in all honesty I could do with a Suit made of the Stuff as I feel as if a bus has hit me today! The pain is horrendous and extremely wide-spread!

I was so stiff this morning my hubby had to lift me out of bed, then I thought I was going to snap something! Even the souls of my feet hurt today, does any one else get pain there?

I have to agree with gin, thank you my friend, it does help to be nutty or we would"nt be able to tolerate the pain we have. I have also had a good laugh on here, when I did"nt think I would crack a smile of a day! Oh, what is this Coach Trip I have just heard of your"re all going on tomorrow, I must have missed that one? Are there any seat available, I could do with a day out, as I hav"nt been out for past 18 week, I beg your pardon, I have been to lots of hospital appointment, does this count? Also will you take me in my P,J"s please??

It is lovely to meet you Diddles, I hope I bump into you again sometime?

You certainly have joined a fabulous Site, I hope you enjoy and get as much out of it as I do. I can"t thank all the member enough, for their support and helping me stay "sane" since joining (sane part is a matter of opinion my hubby says!). You need never feel alone again now you have become a member here!

I hope you get some sort of pain-relief very soon. Take Care.

Sending you positive healing energies your way

God bless

Betty Baby

[Hidden in reply to loppyloo61]

Of course you can join the trip tomorrow it would be lovely to see you

[loppyloo61 in reply to Hidden]

Thank you, book me a seat please, I"ll see tomorrow. where are we off to?

Sending everyone positive healing energies. Good night, sweet dreams. X

[rowantree]

Hi you sound like me! have you also looked at the HMSA forum as there's some great advice for HMS sufferers. I've been given v specific physio exercises as lax tendons mean muscles have to work harder. Stronger muscles mean less achy ness . Good luck.

[lilian68]

welcome to the site hope you can get some better pain relief sorted soon .gentle hugs

[Hidden]

I was similarly prone to fainting as a child and also complained regularly that various parts of my body hurt, especially when moving around a lot, e.g. walking far when I would always lag behind because my legs hurt. I was also double jointed and do think that has something to do with it. A low dose of amitriptyline is said to work but I prefer to stay off meds and find ways of dealing with the pain through changing position, diet and letting emotions out. I hope you find a way to feel better. Suex