Why does it hurt so much.?: Thanks for... - Fibromyalgia Acti...

Fibromyalgia Action UK

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Why does it hurt so much.?

8 Replies

Thanks for all the excellent replies- very nice to see so many people doing their best to keep up with life- Now; if you do what I do then be prepared to be told off with a very loud voice by the other half-

Here's my story-

When in school I hated being told to go outside and play football/hockey/netball/ or anything else to do with PE.. so every Friday after dinner, I "Vanished" to the school library to read car repair manuals. I did that for 2 years and got quite knowledgeable- leaving school at 16 I walked straight into a job doing small repairs replacing batteries, bulbs, dynamo's, alternators etc- The deputy Head came to my garage one day and saw me bending over a car.. he didn't know it was me and said, "hey mate" I turned and smiled and asked what was wrong, "Oh its you Jones" he said: I replied "its Karen now, I'm not in school"

He said "its my lights they don't work"- so I fixed them- they were both blown with age..He was amazed at how clever I was in doing the repair so quick.!- And guess what.? the school now does car mechanical training-(Girls and Boys).. all of my life I've done for me, not anyone else, and I am very self driven.. My brain says "go for it" - "do it now" my body screams out for rest before I've begun.. So I do it, I go for it and end up on the floor exhausted, like last year when I mowed our small lawn..! But I won't stop until its done- work- rest-get up, work -rest-get up, work-and so on- Yes I get tired, don't get me wrong, very very tired, but I won't stop, Until him indoors shouts at me and demands I stop walking around like a drunk and come in to rest- He even has a video camera watching me to ensure I don't fall and hurt myself which has happened on too many occasions..! But it WON'T stop me- while I breath, while I can still move around with or without pain, I will never let any illness drag me down to the point of not doing anything- I'm not brave, more stupid to be honest, the dss know exactly what I do and what I've said, I've never lied to them about me- don't see the point as I won't remember what lies I said in six weeks never mind months..!

I take Flurbiprofen (NSAID) which is a Non Steroid Anti-Inflammatory Drug since 1994, and have a list of other problems longer than my Doctors arm.! But giving up is not something I can do-EVER.. please don't take my life as one of "you must do more or better" but its a personal drive not to let life put me into an early retirement- from being alive- I take a month to do what I used to do in 7 days, but so what.. I still do it eventually... and to me, that's all that matters... remember this.. PMA.. it'll get you thru- Regards to all..

KAREN.

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8 Replies
dondons99 profile image
dondons99

That's amazing hun x

in reply to dondons99

Thank you- I have wrote this to hopefully bring people to see they can live a good life- maybe not as good as they would like or had- But to say- its as good as it gets today.. tomorrow might be better- hey ho.. got to go.. love k.

dondons99 profile image
dondons99 in reply to

Hi that is so true thank for that very uplifting xxx

TheAuthor profile image
TheAuthor

Hi kazzgirl

Thank you for yet another inciteful and interesting post. I have to admit that I overdo things also, but in a good way. I have a disabled wife (Primary Progressive MS and a sister with Downs Syndrome), and it is a pleasure and a privilege to care for the people that I love.

Mind you, I have always found that I can manage my Fibro better if I pace myself. If a task takes 20 minutes I give myself 30 minutes, and then I will rest for a time before doing the next task. It works for me, so I plod on and on ..... Nothing like the life that I use to lead, which was high profile and in the fast lane, but I am a happy and contented chappie.

All my hopes and dreams for you

Ken

in reply to TheAuthor

If life was perfect, we would be gods.! But we are all so different and that's what makes us unique.. When I'm ill, I think of the Rabbit and the tortoise.. Rabbit goes fast and lives for 4 years- the other lives for 100 years and goes slow...

sweetdreams1234 profile image
sweetdreams1234

Love all the posts from each of you.

Very inciteful.

Uplifting and hives me new ideas..slow down and enjoy the strength and energy we have tomorrow Is another day.

Like ken ..definitely not my life before a year 1/2ago.very fast paced and professional.

I'm happy though.work full time still but close to home.

God bless you all.

Hugs.sweetdreams1234.💜☕

fibromite35 profile image
fibromite35

Karen, I really admire you for this. I am the same way. I push and push until I just can't go anymore. I still work full time, take care of my house, help raise my grandson, work in the yard a lot, do everything the average person does. I just do it all in excruciating pain and can hardly move a couple hours after. I stay very depressed, even with antidepressants, but I refuse to lay down and let this disease take me over. Keep workin' girl. We gotta work til it kills us, literally!

in reply to fibromite35

Well; I don't wanna work to kill me- nor should you- that is extreme.! but I believe hard work when it suits- the body is like a battery, carry on only half charging it and it runs dry quickly- we need to run out of energy totally.. then take 3 or 4 days to slowly recharge- the body then gets used to being fully recharged eventually... K.xx

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