Fed up of fibro

[Robbie2057]

I am 43 and now cannot work because of fibro. Feel all washed up and useless.

Terrible pains all over. Living on pain killers. Also take pregabaline.

Just looking for some support I guess.

[rosewine]

So sorry that you are feeling so down. I can understand why as at your age you should be looking forward to the best part of your life and not having to deal with so much pain. I can sympathise with having to give up work as I loved my job but the pain just prevented me from thinking straight enough to do it properly. Even though I still miss it I was only about 3 years off retirement age but I had intended carrying on working as I had done the job for so long and it was a big part of my life socially as well as work wise.

I know some days are just worse than others there is no rhyme or reason with this illness is there.I am on Pregablin and although it has helped me immensely with the parts of the pain which are the shooting, burning ones it does not touch the others which I am also on a load of painkillers for but which only take the edge off it. The Pregablin also can make you feel very tired which doesn't help does it. How long have you had the illness? Have you been referred to a Pain Clinic?

You have come to the right site for help and support as people are very kind and caring and there is usually someone around. Soft hugs, hope you have a good night and feel a little bit better in the morning.x

[Robbie2057 in reply to rosewine]

Hi.

Thank you for such a lovely reply.

I was diagnosed eventually in sept of 2014.

I have an appt next month with the pain management people.

Thanks again.

Rob.

[jellynpain in reply to Robbie2057]

Hi Rob,

It's flipping horrible and not being able to work takes alot away (not just financial).

I've been unwell for 3 1/2years and can't work (fought it as long as I could though). Spend alot of time alone & poor mobility . Anyway, that's not going to cheer you up!

Hopefully the pain clinic will help, but also use every avenue to keep in touch with people, support groups, friends and family of course. Anything not to feel down and alone.

Feel free to message anytime. Xx

[Robbie2057 in reply to jellynpain]

Thank you for your support.

[rosewine in reply to Robbie2057]

It is early days since your diagnosis although it might not seem like it. I know it was at least 6 months before I was put on Pregablin and I had to wait 6 months after I asked for an appointment with a pain expert which seemed like an eternity at the time. Good advice from Jellynpain about trying to keep in touch with people even if it is just by telephone or e mail as you will miss the company of people at work. I know when I was first ill the internet was a life line and this site definately a game changer.

In the meantime if you have any questions the FibroAction site is a mine of knowledge and the people on this site who have probably all been through the same things can really help with good advice.

Glad to hear you have an appointment quite soon with the Pain Clinic. Let us know how you get on when you get to see them.x

[clare_hart in reply to rosewine]

I surely agree about the pregablin. Most of the time, the spasms in my hips and hands are improved but still occur. A lot of my lower back pain is gone, but if I overdo it, like too many loads of laundry (3 or 4) my middle back and shoulders & neck flare up. The pain in my neck and shoulders never goes away entirely.

The pregablin is also supposed to be good for anxiety.

I am sorry you have developed this at such a young age, but you are not alone here. I was diagnosed recently, but I know I had it for probably 9 or 10 year, maybe longer, since I was around 50. I am now 60. Yes, you will have better and worse days. Just don't overdo your chores and errands, etc. You'll feel it the next day or soon after. Once you have this awhile, you will know what your energy level can tolerate.

Pain meds. Aren't you on any? Maybe you should ask for referrals, like to a pain management clinic assaid above, a rheumatologist, and so forth. People on the site can tell you more about this as I am in the US.

I wish you the best in finding ways to adapt. I am truly sorry it has taken such a toll. ((((o))))

[Ian123]

There is so much change that happens in a life with a diagnosis that giving loads of information at this time probably will not help. If you were rescued from a car crash they would not be handing you the hospital menu, asking for decisions when you are not really coping.

This is a crash just the same you are still alive and breathing but a lot else has changed that takes time getting your head around those changes. Many of us have crashed out of the life we thought was all set out and found ourselves as you do now, so your not alone and lost because you are with a community that supports members.

[ninjananna in reply to Ian123]

Wow! Ian...such a fabulous way of putting it!! What a clever chap you are!....much love.... Ninja....xxx

[George1973]

Hi we have all felt the same as you at some point ,don't let it get to you so much,I do laugh at times at the silly things I've done with my memory like a goldfish,can remember where I've put things,my husband has found things in the freezer the washing maćhine,and I can't remember putting the meat in the washing machine,and the washing powder in the freezer,but hey I just think in time you will learn to cope take care

[TheAuthor]

Hi Robbie2057

I am so sorry to read that you are suffering so much and I genuinely hope that you can find some resolution and relief to your pain issues. It may be worth discussing how you feel with your GP or Medical Specialist, as there are many other medications that you could discuss with them that may work better for you?

I want to sincerely wish you all the best of luck.

Ken

[BeccaBurton]

Hi Rob

I'm sorry to hear you are suffering. Isolation too is difficult and adds insult to injury!!

One thing I have found very helpful for reducing inflammation is experimenting with diet. I have found that drastically reducing sugar alcohol and cutting out gluten and to a large extent grains has made an enormous difference to pain levels. . It has also helped me to feel a little more in control in terms of pain less if I don't eat x y z but I can choose to eat x and be uncomfortable. Might be worth a try or researching yourself. Hugs xx

[Michelle71]

Hi Robbie

You sound like me, I'm 43 and the same I feel useless

But I'm going to try and volunteer somewhere or maybe do a course

To make me feel better hugs xx

[Robbie2057 in reply to Michelle71]

I would like to thank you all for your support and wonderful replies.

[michaelb62]

Hi Robbie

I am now 52 and have felt the way you do for a very long time I haven't been able to work since i was 25 due to Fibro and now osteoarthritis in my knees, hands and hips I have tried to go back to work college and even uni but my body just refuses to let me. I am living in an awful flat and battling with the council to be moved my daughter has moved in to help with my care but at 22 she also has fibro and a labrial tear in her hip. I also have two sons with fibro one is now 25 and one 26 both diagnosed in there 18 and 19 years old they do at the moment manage to work although to top it off the 26 year old has also developed his fathers my ex's Crohn's disease and the 25 year old has had three DVT's and suffers high blood pressure so is on Beta blockers amongst other things. I feel awful that they have this horrible illness I have suffered with knee problems since i was 14. Pregabalin didn't help me at all i have seen it help lots of others i have also taken Gabapentin the only thing those pills did to me was help me put weight on. I think its a matter of trying different pills until you find something that helps. I have been trying mindfulness although it takes some concentration which i don't always have but when my brain won't shut down at night it sometimes helps. Although tonight is a bad night as it is now 5.36 in the morning and i am wide awake.

It is very difficult when we feel socially isolated and alone because people cant see this illness they don't see what we have to live with. There are days when i wonder what the point is just existing but then i think there are people that are worse off than us. Try and keep your chin up and never feel alone as there is always someone on this site and everyone knows what you are going through. Sending you a gentle hug.

Jackie