Getting better : Hi everyone, I haven't... - Fibromyalgia Acti...

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Getting better

Angiedeaks profile image
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Hi everyone, I haven't posted for a long time as I've been on a bit of a journey. I've had Fibro for 10 years now and as mentioned in my old posts, I had more or less accepted it and was starting to manage a lot better. It has taken a long time to build up to being able to exercise, I never thought it possible. I was on a combination of amitryptiline, citalopram and tramadol and was finding life a lot more manageable. I have also been having a sports massage every fortnight which helps with the tension in my back and neck.

However, my mind was still very foggy and I felt rather numbed at times and unable to think properly. Flare ups were still agonising and stressful. I was feeling that as i was exercising, I was so close to maybe living pain free but something is stopping me. I read a book called how to heal your life by louise Hay, which was great as I started to realise a lot of things that caused me stress, my mum mainly which I won't go into. Also, fibro started to snowball for me when I was pregnant and I was in excruciating pain when I was training to be a nurse, it was like a trigger that turned on fibro and I can't turn it off! I have since spoken to a man from school who is into German new medicine, and I've had 2 sessions with him and I've done lots of research. It's a very interesting theory, and as I'm very open and willing to try anything, I have been working hard on myself to identify what thoughts trigger the tension/heaviness/aches/ spasms etc. I don't fully grasp their whole concepts but I do feel able to control my thoughts. I thought I was a positive person who was 'I can' about things but I wasn't, as just because I said IT I didn't believe it. I have now come off all medication and sometimes have 1 tramadol to get me through an exhaustive heavy episode. I'Ve always known that a hot shower and relaxation is the best painkiller for me, stress makes my fibro 10 times worse. It isn't all in our heads, grrrrr, but I think maybe we are susceptible for carrying stress etc in our nervous system. I'm finding yoga and relaxation very therapeutic and my pain levels are at 10% instead of 80%. I know my story isn't possible for everyone, but I'm a healthy 32 year old, who has had many conflicts over the years, and feel that there is light when you have this condition. It has taken a long time. The fear of not being able to walk again (as I used to be) is one I have to tell myself that whatever happens, I know I can get over it and get myself better again. My energy levels are great, not all the time, and I'm also very aware of what I eat. I have learnt that junk food or eating unhealthily makes me feel terrible and in a bad mood. This now makes sense after watching Dr Bergman on YouTube as serotonin is Mainly produced in the gut. I don't bother with the GP anymore as giving me more pills is not addressing why I started to feel this pain in the first place. This condition is mind boggling, as for many people we are trying to find out why! I hope people find some relief in however you manage your symptoms. I know its hard to exercise, but when your body is stronger, tasks are easier to do. I can now carry my son without crying and thinking I'm going to drop him and causing back pain for days. It is easier said than done, but the more I don't move the worse I am. Ps the fog isn't bad now as my mind is clearer, I think the Meds made it worse too. I'm sorry if that's a bit jumbled up but I was trying to write things as they popped in my head. Live, laugh, love and don't give up,

Lots of gentle hugs to you all, Angie x

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Angiedeaks
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sophie22 profile image
sophie22

Hi Annie, it's lovely to here from someone who has found a way of dealing with this condition, I am sure your experiences will be very helpful to those who can't pinpoint what has caused their fibromyalgia, I have had fibro myalgia for 15+ years now and like yourself have been on a journey to help myself, unfortunately my trigger has been a physical accident which damaged my back, I do find positive thinking and meditation very helpful for managing the pain. Your are right in saying that stress aggravates the condition and can make things worst. It's a bit of a vicious circle when you are in chronic pain as the pain stressess the body out and the mind. Gentle hugs and best wishes.

rosewine profile image
rosewine

Thank you for your inspiring post. I hope that everything keeps on improving for you.x

Crazy_Horse profile image
Crazy_Horse

Thanks for sharing your experiences. Congratulations to you for sticking with sorting out what helps you.

Encouraging.

TheAuthor profile image
TheAuthor

Thank you so much for your post, it is inspiring and very interesting. I want to wish you continued best of lcuk and I sincerely hope that your health stays really good for you.

All my hopes and dreams for you

Ken

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