eSA support group: How do we get into... - Fibromyalgia Acti...

Fibromyalgia Action UK

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eSA support group

Jeannie profile image
6 Replies

How do we get into the support group?? I've an appointment coming up n seems ridiculous to suggest I can work. If I could work I would as flipping miserable being at home on my own.

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Jeannie profile image
Jeannie
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6 Replies
fibrokaren profile image
fibrokaren

It seems to be in the lap of the God's and what the assessor had for tea the night before your appointment, which group you are put into, and as you say we would all be out at work if we could. Who in their right minds wants to live on the derogatory amount of benefit the government deem to allow us.

Trying to live on benefits is a constant struggle of robbing Peter to pay Paul and praying nothing goes wrong.

One year in desperation I took in a lodger, well once the council and DWP found out you would have thought I had committed mass murder so you can't even try and help your self any more.

I was lucky enough to be put into the support group without having to have a medical assessment, I don't quite know how it happened but I was so relieved , I had been waiting 9 months to hear from them and I dreaded the postman coming every day, so I can feel your anxiety over the whole process.

Orangeblossom profile image
Orangeblossom

I am in support group but also have depression and anxiety, was on incapacity benefit first though. Through having a medical for PIP the assessment put me into the support group under exceptional circumstances- it is 35.2 here I think. They don't know about the fibro yet though however I do have another physical condition too. I would recommend Benefits and work site to help with the forms.

legislation.gov.uk/uksi/200...

Speedracer profile image
Speedracer

I wish I knew!

I was put into the work group without my knowledge or a medical, and when I found out & wanted to appeal I was told to wait a few months until the decision was re-assessed, because it would be quicker than appealing. Then when that day came I was then told I was in the work group indefinitely! So now I am writing to the DWP to complain about the whole process and ask for the decision to be changed.

It is absolutely farcicle, my fibro means I am in constant pain, even just waking a few steps sets off my sciatica and the restless legs keep me awake all night. Then because of my psoriasis, which covers most of my body these days, I find it difficult to even get dressed some days because of the areas I have to apply ointment, which then ruins my clothes.

So in summary I hope you have much better luck than I have had.

Witchygirl profile image
Witchygirl

They have no understanding and a total lack of compassion. A country is meant to be judged on their treatment and services provided for their sick, disabled and disadvantaged in society. Says a lot for us now doesn't it.

TheAuthor profile image
TheAuthor

Hi Jeannie

I just wanted to wish you all the best of luck with this, I have been through anything like this myself.

All my hopes and dreams for you

Ken

emmajj1971 profile image
emmajj1971

Contact esa and they wil be able to advise you. I was put in the work group and appealed so they just looked at it and put me into the support so didnt so for full appeal. Good luck x

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