Hi all and happy 2015 (or not in May case) I have not spoke about my fibro really to anyone apart from my go and hospital but I'm struggling especially of a morning the pain is almost unbearable and I have 2 young children who need me, feeling very tearful right now and have no one who understands, any advice would be grateful , I'm 38 on pregablin, 20 my X2 mst, oramorph for break through pain and duloxatine . Thanks in advance carol x

14 Replies

  • I'm also very stiff in the morning. I find these microwave wheat heat packs are my life saver. Heat really helps me.

    Perhaps if your pain is not being managed with these drugs its time to go back to the doctor. Not all drugs work for everyone. Can you see if there is a local support group nearyou. We have one where I am tho I haven't made contact yet. Having people to talk to cry with etc might really make you feel supported. What area are you in?

    Gentle hugs xx

  • Hi sorry for late reply been a bad dew days, I'm from Liverpool, feeling a bit more positive today although it's 4.20 am and I've had now sleep and do the school run soon but strangely don't feel as bad as I thought I would, thanks for reply and I will have a look for a group although I deal with the children's centres a lot and have 2 disabled boys so my problems come last at the moment lol 3 boys driving me crazy xx

  • Good afternoon Loopy and a warm welcome to Fibroaction site.

    Firstly may I just say I hope you find all the information you seek and the lovely people who will help guide you through the mazes of information that are available.

    Remember we are just sufferers like you and although we have maybe experienced fibro for a longer time it makes us all the same- people who bear our lives through pain. We are not however medics in any way and always consult your GP to confirm your suspicions.

    Do take a look at our home sit Health unlocked and also both worthy of your time.

    I take pregablin duloxatine but I use short tech as my pain buster. We are all different . As you will see around the site many different things are used to combat pain including our love of the ridiculous basically anything to divert ourselves. Please join in when you like.


    x ginsing


  • Snap :d :d we must have been typing at exactly the same time :p :p

  • Thanks for reply x

  • Hi there :-) and welcome to what I consider to be the very best forum for Fibro sufferers, with a great deal of support, advice, and friendship. I would suggest that you might like to take a peep at our mother site where you will find a lot of useful information including advice on pain management and specialists etc.

    It does sound like you've got your hands full with your two young children, we have other lovely members here who also have children and I am sure they will come forward to offer their help too.

    We try to have a be of fun as well as we have found that laughter releases feel good endorphins, which has to be good :-)

    With regards to medications we can only tell you what works for us as individuals and always urge you to speak with your own GP as we are not qualified medics.

    I really look forward to seeing you around the forum and getting to know you better, and I'm sending lots of positive healing vibes your way :-) :-) :-)

    Foggy x

  • The post above mine is from Ginsing our highly esteemed administrator, she is a great person and has a "virtual" coffee morning everyday where we can all catch up and have some fun ....she's fab !! :-) :-)

    Foggy x

  • Hi loopy1498 there are many in this supportive community who will understand from personal experience exactly how you feel so dont feel isolated keep talking.

    Limit myself with one piece of advice do not beat yourself up for been ill it was not something you chose and doing your best is all anyone can ask of you, yourself included.

  • hi loopy1498 welcome to the forum it is good to share your problems there is always someone on here to chat to we are a really friendly lot you can't help being ill it is not your fault you have got fibro which limits what you cando and the pain wears you down hope you feel a bit better soon.

  • Hi the duloxatine is meant to be very good and i can relate to you very much the pain the none sleeping and everything eles and your so right about no one undrstanding.

  • Hi loopy1498

    I sincerely hope that you are feeling as well as you possibly can be today? Welcome to the forum and it is wonderful to make your acquaintance. I genuinely hope that you find the forum useful, informative and loads of fun!

    can really relate to what you say about mornings, as I always feel awful in the morning. I have a new adjustable bed but it has not helped me at all. I want to wish you all the best of luck and I sincerely hope that you find the answers that you so desperately desire and deserve.

    All my hopes and dreams for you


  • Hi Carol,

    I too have young children who need a lot of hands on work in the mornings.

    I can tell you what works for me.

    I find it easiest to get up before them and shower in a hot shower, and then after my shower I rest for 15 - 20 minutes again before getting dressed. Once I'm dressed I then feel a little less stiff and sore, and although the exhaustion is still there, I find that doing it in this slow, unrushed manner helps me to wake up and for my brain to switch on before i have to deal with the kids. I also make getting my breakfast a priority.

    I try to ensure I have prepared for the morning, the night before, by ensuring the dishes are done and the kitchen is tidy, and laying out the breakfast things and anything that will help me to prepare them for school, ie, lunch boxes and water bottles ready, school bags packed, uniforms and shoes all laid out the night before (I do this with my clothes too, so I don't have to think about it in the morning). If there's anything special that has to be taken it is ready and waiting by the door for me the night before. (eg, musical instruments, gymnastics gear etc).

    As you can see what I'm doing is removing as much of the morning work and prep and *thinking* as I can, by doing it the night before. On the odd nights that I've had to go to bed at 4pm and left my hubs to deal with things, he knows what needs to be done, and even if he doesn't do it all, I know I have that unhurried time in the morning so there's "spare time" to do anything that needs to be done.

    As for having no support network, has your gp offered you counselling for getting your head around your diagnosis? It might be worth asking, if not. Sometimes all we need is someone to hear us without judging. I hope you can get some rest and come out of this flare soon. It's really tough being the one the kids look to, when you're struggling just taking care of yourself.

    It might be worth trying to get a daily walk outside, to boost your vit d levels. (Have you had your vit d checked?) Do you have anyone you can share a cuppa with on a regular basis? I find that for me, sharing a coffee with a good friend is one of the best parts of my week. It's a time I don't have to pretend everything's fine, I don't have to be anything I'm not ... if I want to dress up and wear makeup and a skirt, I can, but if I turn up wearing trackpants and a baggy sweater, that's OK too. As long as I make the effort to be there, I feel I've achieved something and getting out of the house is magical. Of course, if I really need to cancel due to needing to sleep, that's OK too. My friend is very understanding. I don't talk to her about my illness often, I prefer that time to be focussed on "normal" conversation - so we bitch about our husbands (or boast about them, depending on what they've been up to!) and put the world to rights over tea, a time honoured tradition. :D Sometimes I spend my whole week looking forward to my date with her. When I'm in the grips of a flare up, it's the highlight of my week. Sharing social time is very therapuetic and beneficial. I sincerely hope you have someone you can do that with.

  • hi know how you feel Was so bad few weeks ago just wanted to give up. My old doctor was good and he said fibro came in waves so try and ride this out ,thinking of you


  • Thank you so much for all your replies, it's good to know I'm not alone and there are people who really understand my daily battles, I'm a very relaxed person love a good chat especially with a friend I have recently become really close too and she gets me out the house a lot even if it's only to the cafe round the corner for a coffee and she also doesn't mind me being on a mobility scooter as she younger than me I thought she may feel embarrassed but she takes it all in her stride, I've been enrolling myself in local group activities for instance I've just completed my second basic sewing course and even on the days I couldn't do much people were very understanding and we had a good laugh too, I'm about to start my 3rd next rTuesday cannot wait lol, you are all amazing strong people and cannot thank you all enough for you replies especially from ukwahine I think I will be giving your morning routine a go, I do get up earlier but that's just to take my meds so I've got some kind of function lol , I will come on when I next get a chance....

    Keep smiling

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