Newby

[Cazza-mazza]

Hi folks I'm new here hope everyone is as well as can be in the circumstances x.. I've been a sufferer for 5 years now and although at diagnosis I was told this is not a progressive illness I have got steadily worse over time. Wondering if everyone else feels they were misslead in this wayby the medical profession. X

[Flyby7]

Hi and welcome

[Golfer15]

Hi and welcome to the group. I'm sure you will find it helpful. I have been diagnosed 2 years but had it longer. I have found symptoms to get worse too, and I was told it's not progressive.

Take care

David

[Dizzytwo]

Good morning and a very warm welcome to the group. I have had fibro 30+years now and I understand how you feel about been misled by doctors. But I honestly don't think they understand or know enoug about fibro to know if it can get progressive or not. My thoughts are they know it can't kill you and all the tests come back ok so how can it progress?

We have a mother site you may like to take a look at it has a wealth of information you might find useful fmauk.org Please feel welcomed and I hope you have a nice day

Mo xx

ps I have noticed you have not locked your post. This will stop your posts going out onto the world wide web. You will find instructions on how to do this to the right of your screen under pinned notices.

[DanielleGemma in reply to Dizzytwo]

Also, to add to this, you will find that you will get more replies normally if your post is locked x

[Hidden]

hi, i have also got progressively worse over time the thing with fibro is it doesn't seem to be a 'one size fits all' condition

[Fallabella]

Hi Cazza-mazza, great to meet you. I was only diagnosed last year but think I've had it for at least 7 years. I was told next to nothing when diagnosed, just handed a leaflet to read and sent on my way.

I too have found it to be progressive and feel unsure of what the future holds. The doctors have given me precious little by way of advice. But at the moment I'm telling myself to 'chin up' and take it one day at a time, what will be will be.

Hugs xxx

[Hidden]

Hi Cazza-mazza welcome-lots of ideas about wether fibro is progressive, It can seem to be by sufferers it depends really on what therapy you are offered to help to avoid progression. has your cons or gp offered you any physio, occ therapy or hydro?

[DanielleGemma]

Good Afternoon Cazza-mazza

I think that not a lot of information is known about our illness and there hasn't been enough time and money spent into researching the effects that it has on people. A lot of people say that they have worsening on their symptoms as time go on, I definitely have but it all depends on the person xx