Fibro Pain: having a really bad time... - Fibromyalgia Acti...

Fibromyalgia Action UK

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Fibro Pain

mo1mo2 profile image
5 Replies

having a really bad time with fibro Seem to ache all over and quality of sleep is zip. Blaming weather to a degree but cant stick much more of this Maureen

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mo1mo2
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5 Replies
Fibrofoggiest profile image
Fibrofoggiest

Hi Maureen and welcome to what I consider to be the very best site for information, support and friendliness :-)

You might like to take a look at our mother site fibroaction.org where there is a lot of information which you might find useful, together with notes of fibro friendly dr's etc.

As one of our highly esteem administrators Ginsing, says, draw up a chair and wait for the fun to start. A lot of us find that laughter is a good way forward and releases feel good endorphins, so do feel free to join in as and when you want to :-)

You have my complete sympathy with the quality and in my case, lack of, sleep, it is very debilitating, and as you also say I think the weather is kicking all of us quite hard at the moment. Can I ask whereabouts you live, roughly, but I won't be offended if you would prefer not to, why I ask is that we are a UK based site, but we are finding increasing numbers of people from the USA are joining us, which is great, but it helps to know as drug names etc.l are different !

Excuse my ramble, I am sending lots of positive healing and sleep quality boosting vibes your way :-) :-)

Foggy x

mo1mo2 profile image
mo1mo2 in reply to Fibrofoggiest

Hi thanks for reply. Live in Belfast. Have had various drugs tried all pretty useless. Really hate fact I can plan nothing as never sure of how bad I will be. At moment try to get out in afternoon as in bed to lunch and after 6 pm I am all in. old doc was good but retired so new young one not so understanding

Maureen

TheAuthor profile image
TheAuthor

Hi mo1mo2

Welcome to the forum, and I genuinely hope that you find it useful, informative and loads of fun! It is wonderful to make your acquaintance, and I Iook forward to bumping into you around the forum. I can see that our ''Foggy'' has given you the link to our mother site, ''FibroAction'' and it is loaded with useful Fibro information.

I am so sorry to read that you are struggling so much, and I was wondering what medications you were taking? If your current drugs are not working it would be worth discussing this issue with your GP or Medical Specialist, as there are plenty that they could discuss with you and let you try? I have found that pain management is a question of trial and error, and what may work for one patient may not work well for another.

I want to wish you all the best of luck with finding the right combination of medication for your pain.

All my hopes and dreams for you

Ken

mo1mo2 profile image
mo1mo2 in reply to TheAuthor

Hi thanks for reply. Doc has tried several drugs and am on amitrip at moment Lot of drugs had

bad side effects and I have other medical conditions as well as having thyroid cancer 3 years ago On waiting list for pain clinic but not holding out much hope.

Maureen

TheAuthor profile image
TheAuthor in reply to mo1mo2

I am so sorry to read that you had thyroid cancer and I sincerely hope that you are on the mend? I genuinely hope that your pain management clinic goes well for you when you get your appointment.

All my hopes and dreams for you

Ken

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