Waking up in pain

Just needed a rant this morning. Am newly diagnosed and am getting really frustrated at waking each morning with a new pain. Today it's under my ribs which is a new one.

I am on gabapentin which is helping a little, will I ever be free of it or is this it now?

Half the time I feel like curling up crying and staying in bed, but others I want to do everything just for the hell of it and ignore all the pain, but that doesn't last for long!

How did you all cope in the early days?

5 Replies

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  • Well I had a baby, and therefore could not give up as someone relied on me (and his dad).. Giving up makes you worse in the long run but you do need to learn to pace yourself as i have found that the most effective treatment.

  • Hi there, and welcome to our forum, which I for one consider to be the most friendly and supportive one there is :-) and a good place to come for a safe rant :-)

    In answer to your question, I think each of us cope in different ways because we are all effected differently by the monster we face each day. However, I would agree with Betty and say that pacing yourself is probably the most important and effective tool, despite being the hardest to actually achieve.

    Sometimes we all feel like giving up, but realistically we can't, we have to find a coping mechanism which suits us and the lifestyle we live, within the constraints of our condition.

    I'm sending lots of positive healing vibes your way, and we are all here for you, to help in whatever small way we can :-) :-)

    Foggy x

  • Hi, I am fairly newly diagnosed, well I say that but really it is more I am only recently accepting the diagnosis. Pacing is definitely best advice, easier said than done though. I think worst bit apart from the pain and tiredness is the other people who totally disbelueve you and think its all imagined as physically there is not much difference if any in your appearance.

  • Hi veggiemomma

    I am so sorry to read that you are suffering in this way, and I genuinely hope that you can find some resolution and relief to these issues. As and when you get new pains (of such severity) it is always best to discuss them with your GP or Medical Specialist just to get others conditions ruled out.

    I have pasted you a link to the NHS Choices pages on Costochondritis which can cause rib pain. Many of the members also have this condition (as do I), so I hope that you find this useful. It may be worth talking to your GP about this if your pain persists or gets any worse?

    NHS Choices - Costochondritis

    nhs.uk/conditions/Tietzes-s...

    I want to wish you all the best of luck and I hope that your pain subsides very soon.

    All my hopes and dreams for you

    Ken x

  • Thanks for all the help, much appreciated. Still have the rib pain, so back to the doctor's I go!

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