My wife currently suffers the following symptons:
Skin Irritation, Sleep Disorder, Diziness, Lack of concentration and memory, anxiety and depression, sore musclea with twitching, bladder problems, visual problems (doublevision) optometrist says not an eye problem, Jaw pops out, IBS and gaul bladder removed, uncontrollable fatique and loads of skin irritation and sensitivity. She also has oste aphritis of the hips and neck, (chronic pain in the lower back both hips and both knees and kneck) . She has been complaining of this for years and we have only just found out about this condition this morning. When we suggested fibromalgia to the dr today, his attitude was "Its just a Label" we cant treat it so us calling it that wont help you. She has no quality of life. Mobility and thought, memory and skin problems have gradually become worse and worse. this has been happening for well over 10 years and bit by bit i have watched this break her emotionaly and physicaly. She finally decided to make an esa and pip claim as there is no way she can work in this much pain. The dr is been really unhelpful. when it comes down to individual symptons all we ever hear is that is just a wierd skin complaint or we dont know the test are normal. do they not understand that naming it is at least a start for the patient instead of hearing ummm thats not indicated in the latest bloods, mri etc ? This has been going on to long with no end in sight. My main question is what can we do now ?