ME: Hi all I'm wondering if I have ME... - Fibromyalgia Acti...

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Wendyld profile image
15 Replies

Hi all I'm wondering if I have ME!!! My tiredness is worse than I've ever known it with my Fibro. I am getting terrible joint pain & awful headaches. I'm not sure if I should go to the dr about it.

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Wendyld profile image
Wendyld
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15 Replies
Betty67 profile image
Betty67

bear in mind I have no medical training but in my opinion ME & Fibro are very similar and both are examples of Chronic Fatigue. I read somewhere that Australian doctors consider them to be the same condition.

Wendyld profile image
Wendyld in reply to Betty67

Thanks Betty, I'm sure you're right. Think I will just mention it on my next GP visit x

Betty67 profile image
Betty67 in reply to Wendyld

Good idea, I have been told at various times that I have ME/ CFS /Fibro depending on who I am seeing. Dr Sara Myhill explains it on her web site. Hope you find help soon.

TheAuthor profile image
TheAuthor

Hi Wendyld

I am so sorry to read that you are experiencing such problems and I genuinely hope that you can find the answers that you are looking for? I would definitely discuss this issue with your GP so as other issues can be ruled out.

All my hopes and dreams for you

Ken x

elliedolly profile image
elliedolly

When I asked my consultant about I think I have ME he said I didn't because I have fibro. As they are nearly the same. Anyway, I know we shouldn't do this but I have self diagnose myself with ME. I hope you get some relief. All the best, Ellie x

Wendyld profile image
Wendyld in reply to elliedolly

Thanks Ellie I know what you mean about the diagnosis thing. I was told for 5 years that I had RA then it was changed to Fibro xx

wizzy55 profile image
wizzy55 in reply to Wendyld

hi wendyld, i was told other way round fibro no ra, LOL

Wendyld profile image
Wendyld in reply to wizzy55

Not sure they really know sometimes

in reply to Wendyld

The two aren't mutually exclusive; it's possible you have both. :(

bluejeans16 profile image
bluejeans16

Hi. i have and tiredness is a major symptom. It sounds as though you may well have ME. A friend of mine has had ME for 27 years and told me that I had it. I checked out my symptoms on the actionforme website and he was right all of my symptoms were on their list. If your dr has diagnosed fibro they should be able to tell you if you have ME as well.

Wendyld profile image
Wendyld in reply to bluejeans16

Thank you for your reply x

Sugarplumb profile image
Sugarplumb

Hello I am with the Top ME Professor who diagnosed my ME and My Fibro they are 2 different illnesses as one has sore points which is Fibro and the other is what it says chronic Fatigue with aching limbs like walking through treacle I have points at the back of my head that gives me bad heads I have points on my left buttock that gives me constant pain and where the points are if you press it's very sore and needs massage xi hope this helps x

Wendyld profile image
Wendyld in reply to Sugarplumb

Thank you I have the same symptoms so it looks likely I guess. I'm just afraid that my dr will just say the same thing as she always does & tell me to find a job

Sugarplumb profile image
Sugarplumb

You should ask to be referred to a consultant but when you go to GP see another doctor when your in a practice you don't have to

Just see the same one as you need answers !!!!

Wendyld profile image
Wendyld in reply to Sugarplumb

Ok thanks, I will

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