Something I thought I'd share

[Mdaisy]

Saw this on Facebook and wanted to 'Share' with you on a personal level without my FibroAction hat on as I liked it !

[loppyloo61]

Wow that hit a Nerve!! Bless you for sharing that with us, most thought provoking!

I am so glad I"m not the only one who feels this way. That has helped me relieve myself of the "Guilt!" I constantly carry around with me!

I am sure it will help lots of other Members too?!

Grateful thanks to you

Betty Baby XXXX

[Hidden in reply to loppyloo61]

Hi Lynn Lovely to see you on line.

Love and hugs as always sue xx

[loppyloo61 in reply to Hidden]

Thanks Sue, I hav"nt been on-line for such a long time. thanks for your reply.

I hope you are keeping well?

Love & Hugs

Lynn xxxx

[Hidden in reply to loppyloo61]

Thanks for asking Lynn. Im up and down a bit at the moment. But it will pass.

More hugs sue xx

[Betty67]

thank you needed that today.

[tulips123]

whoa. just realised something. every word. at the end there. not my loved peeps fault but I DONT feel loved. I DONT feel respected, and I really don't feel there is much consideration, out of sight and out of mind. like i'm already gone. calling gp now

[lou60 in reply to tulips123]

Hugs ((((((Tulips))))) xxx

[tulips123 in reply to lou60]

appreciate xx g'night

[Mdaisy in reply to tulips123]

Oh Tulips123, it was supposed to be uplifting and to change a mindset that nobody needs feel guilty for illness. I am so sorry it made you feel that way - it wasn't my intention.

Here's the Samaritans number, if you feel low - we are all here to listen too if you want to blog about it.

08457 90 90 90

Please know that people will listen if you need to talk

Emma

[tulips123 in reply to Mdaisy]

so sorry Em. did not mean to worry. you do an amazing job under really tough circs you are not responsible for my frame of mind. i'm ok g'night Tulip xx

[Mdaisy in reply to tulips123]

I know, it's OK we've all been there. I've PM'd you in response to a previous message, please read

[tulips123 in reply to Mdaisy]

p.s. this site is great, mostly helps HUGE amount. many many thanx xx

[Mdaisy in reply to tulips123]

You are very welcome we support each other when & where we can !

[KTRANSC in reply to Mdaisy]

Well it is per se uplifting,but the issue, with an illness still so vaguely defined by the Medical profession, that many patients are afraid of being perceived as a burden,by their loved ones.Not being their usual,active self-in that sense some of us feel "already gone".In nov2013, the BBC, presented a trial,of a newly invented Pregnancy Simulator for men,that a male science journalist had undergone. On a different forum,one FM suffere wrote,she wished someone would invent an FM-disease simulator(not that you would wish it on anyone),to be carried around for a few days,by people who don't understand the severityof the illness.

Kind regards,Kirsten(KTRANSC).

[KTRANSC in reply to KTRANSC]

To Emma,

in line with this,needed to mention,that the "A letter to the healthy World from the land---", was so very valuable, presumably far more telling,than any long introduction to various Scientific studies. I've handed copies out,to people around me,and they've found it most educational and helpful.

Kind regards,Kirsten(KTRANSC).

[TheAuthor]

Thank you Emma, that is so lovely!

Take care

Ken x

[LC74]

This is so true. Thank you for sharing. I have copied it to put on my fb as I feel EXACTLY like this. My hubby suffers from depression and I feel so guilty about the extra pressure I am putting on him. I am still on a phased return to work which is not going well. I am in agony after working yesterday.

This wee community here is so helpful and supportive and I am so glad I found it

Xxxx

[rosewine in reply to LC74]

I am glad there is someone out there that feels the same as me. My OH suffers with depression and anxiety and I know worrying about me with my condition doesn't help him. I try to hide alot of the pain and the way I feel from him to try not to add to his worries but I'm not very successful some days and of course it means I have few outlets for my feelings. That is why that notice resounded with me. Sorry that your phased return to work isn't going well it is such a difference from being at home and being able to pace yourself if need be, I sometimes think once you are back they feel you should be "as normal" and they tend to forget you still aren;t the ticket. Hope things will improve for you soon.x

[LC74 in reply to rosewine]

I do the same as you Rosewine and try sometimes to hide how bad I feel. Work just do not 'get it'. I have been told that I am expected to return to normal working hours within a few weeks. Am still waiting on appointment with occ health so they extended my phased return as this was their fault. Medical retirement seems like my best option if I am deemed elligible.

Hugs to you and your hubby Rose as I understand what you are both feeling

Xxx

[rosewine in reply to LC74]

Thank you. Yes Medical Retirement could be the best if you can get it and then you can concentrate on trying to get well without all the added pressures. I loved my job so was so sad to leave but realise now that it was probably for the best as every day would have been such a struggle and I had the type of job where mentally you had to be at your peak as I was an advisor so couldn't stand the chance of letting anyone down. I have to admit I still miss being able to help people but as time has gone on I am more accepting of the situation. I think sometimes these things happen for a reason and perhaps mine was so I was here more to try and help my husband. Hope everything goes well for you. Big hugs (soft ones of course)x

[Shadows-walker]

I love this , x

[rosewine]

Thanks for posting that it encaspulates exactly how I feel and I will try and remember the last 4 lines I have pasted it into my Inspiration chapter in my One Note.x

[Marielena2]

THANKYOU!!!!! That is exactly it! Xx

[FIBROTURKEY]

Hello Emma that is a great post, we need to be continued to be reminded that it is all part of life what we go thru. When we begin to understand ourselves and appreciate who we are, we then begin to realise how thankful we should be. We have the bad but we also have a lot of goodness!! I am sure it will touch many a person. xx blessings everyone xx.

[Royalspec01]

Ty what a lovely thing to send us all :))