Dont know which way to turn - Fibromyalgia Acti...

Fibromyalgia Action UK

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Dont know which way to turn

drucillablack profile image
11 Replies

Hi im newly diagnosed with FM and I think it was still a shock even though I suspect it. Im just so confused and feel worse for knowing I have it. Could that be the shock and when I come to terms with it willnit possibly calm down.

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drucillablack profile image
drucillablack
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11 Replies

Hi there

I felt the same way when I finally got my diagnosis after years of thinking I must be a hypochondriac, even though my pain and symptoms were very real.

I too was confused and in a way angry too.

I'm sure you'll get lots of other comments saying the same thing.

Coming to terms with it was the difficult bit for me and I'm still struggling with it to be honest. Probably not want you what to hear but I think honesty is always best!

I hope things start to become a bit clearer for you very soon.

Xx

Hello and welcome to the site. sorry that you have been diagnosed with this horrid illness, but at least now that you know for sure that you have fibro you can start to get better treatment and start to learn how to cope.

A lot of our fellow members have found that pain clinic helps them and asking for a referral from your GP may be a good place to start.

what i think is that most important thing to learn is how to pace yourself so that you dont overdo things. That means taking life easier than you are used to and spending more time just relaxing.

Others will be able to explain it better than i can.

I dont know if you have been onto our mother site yet. There you will find lots of information about fibro its treatments symptoms and about claiming benefits. Here is the link..fibroaction.org

You can always come back to us later for a chat or to ask questions.

I hope to see you around.

Hugs sue xx

hamble99b profile image
hamble99b in reply to

can't of anything to add to mayrose's reply except welcome to this group, glad you found us, but sorry for your pain.

lou60 profile image
lou60

It takes time to accept that you are ill, in a strange way it can also be a relief to know what is wrong, read through the posts here ask questions there is so much help on this forum, someone will come along with more advice than I am able to give (fibro fog) I can't think strait. Wishing you all the best. Lou x

Hi, was diagnosed just over a year ago and it was a relief to have a diagnoses. I have found it a lot easier to come to terms with mostly due to this forum. I have armed myself with information and then found lovely fellow sufferers who have proved to be a real blessing. On here they support and offer humour and company if you just need a little moan. So welcome, and I hope you get as much out of it as I do :)

TheAuthor profile image
TheAuthor

Hi drucillablack

Welcoem to the forum, and it is wonderful to make your acquaintance. I genuinely hope that you find the forum useful, informative and loads of fun!

I can see that you have been given loads of great advice so I will just say hello and hope to bump into you around the forum.

All my hopes and dreams for you

Ken x

RayB profile image
RayB

I think any diagnosis can be a bit of a smack in the head at first and it takes a bit of time for it to sink in.

In reality it is what it is and now that you know you can start to learn and to do what is best for you health wise.

Best Wishes, Ray

Hi drucillablack :)

Welcome to our friendly fibro forum and I am pleased that you have come to us for advice and support. I can see that Mayrose has already given the website link to our Mother site for access to all kinds of information including downloadable and printable factsheets.

One of those factsheets discusses lifestyle changes/adaptations and I thought you may like to read it as you are very correct I think that we are learning everyday how to manage our lives around Fibromyalgia. When getting a diagnosis it can be overwhelming to begin with but you have come to the right place for help with your fibro journey. Any questions please don't be afraid to ask or to join in with the posts of which there are varying kinds from queries, education to fun and distraction :)

Lifestyle Adaptations Fact Sheet

fibroaction-public.sharepoi...

I wish you wellness and send you soft fluffie hugs so as to not cause you pain and am looking forward to seeing you around :)

xxx sian :)

drucillablack profile image
drucillablack

thanks guys I really appreciate all your advice.

pleased to meet you all shame it's all because we are all in pain etc.

huge soft hugs to you all.

lilian68 profile image
lilian68

hi welcome to the forum it is a lot to take in that you can longer do the things you used to you grieve for your old life but have to just get used to working with what you can do and not over do it listen to your body.lilian

nissanjean profile image
nissanjean

Same here.

The dr said he thinks certain medications are responsible.

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