Fibromyalgia Action UK
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Don't know were to turn

Don't know were to turn . Hey everyone. I've not posted for a long time due to family commitments. My daughter has just been diagnosed with borderline personality disorder. Her son my 8 year old grandson has been diagnosed with autism & ADHD so things have been tough, I've been there for them 100%. This may sound selfish I have no one to turn too. I have MS fibromyalgia osteoarthritis. Last September the muscle top of left arm swelled up very painful the next week same thing in right arm this time my shoulder became painful since then my arms are continuously swollen shoulder continuously painful with flare ups were the pain is overwhelming the doctor no help. Has anyone experienced this if so how do you manage it . I just don't no were to turn thank you

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Hi, sorry to hear about your daughter & grandson, and with all your ailments to deal with too- I feel for you deeply. I haven't experienced that type of shoulder pain/swelling so not sure how to advise you on that. Where you daughter is concerned... I can identify with you as both my daughters suffer with mental illnesses, bi-polar etc. You should try to find a support group where you can chat to others who are going through similar experiences. This site is a starting point for you as everyone here are ready and willing to listen and give advice when and where it's needed. I hope this helps knowing that people care xx

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Thank you this group helped me a lot before, I'm just sat here crying. I'm going to goggle support groups in my area x

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I'm hear If you need to talk, keep your chin up jackjac1- soft hugs x

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I think if I start talking I'll never stop 😊😊

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Better out than in 👍👍

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That’s not being selfish it’s totally understandable. I’m sure some of the people here will give you good advice. I just wanted to say I’m here if you need to vent. I’m always the person who helps everyone else then when I have to go for hospital treatments or tests I’m on my own so you’re not alone having these feelings x

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Thank you , hopefully tomorrow I'll not feel so low, looking after my grandson on Wednesday so my daughter & son-in-law can spend quality time together on valentine's Day, looking forward to that coz when he's okay he's the funniest sweetest boy we have a lot of fun together 😊😊

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Both of my daughters have ADHD, one has BPD and the other is more or less housebound with agoraphobia/severe anxiety, so I really do feel for you. It really is hard having to deal with children who have become adults who also struggle in life as well as having to cope with our own illnesses isn't it.....

However, you are not completely alone. I use this and the forum related to rant and share some of my own issues, and have found that people here, although they can do nothing phyisically to help, are good at listening, and sometimes giving me a prod in the right direction when I am really struggling..... I hope you find it as supportive as I do...

Safe hugs... J

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Thank you I'm so glad that there's someone on this forum that has a child with ,BPD & understands how difficult it is, dealing with my daughter can be a nightmare, it's like walking on eggshells, when I meet up with her trying to work out what sort of mood she's in, she also has epilepsy. I'm very proud of her though it's been so tough for her with her son having the problems he has sorry Jenny I'm rabbiting on haha once again thank you 😊😊

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It's spasms I've got it now in my shoulder, usually it's my back and hip. I find diazipan taken straight away when you feel it getting tense does relax it. Hope that was helpful, and as you know stress makes it worse it seems you are going through a lot. Xx

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Thank you Tra70 I get spasms in my neck bottom of my spine & my right Thumb I take diazipan & it does work the pain in my shoulder can last for days the thing that bothers me most is why the upper muscles in my arms are swollen, my grandson asked me if I'd been to the gym because my guns were rocking haha. Doctor says it's the information from the fibromyalgia but I've not seen anything about that. Sonu just thought best thing to do is ask people that actually struggle with fibromyalgia.😊😊

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Wishing you well however you shouldn't have to keep struggling through pain but I know how you feel.

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I am sorry to hear about all the troubles you and your family are experiencing. I do think that consulting the doctor should be your next step. You have got to look after you remember.

Dee

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Hey thank you. My doctors away for 3wks I hate seeing another you have to start explaining everything, then it's why are you on this & why you taking so much of that, I feel like a druggie & I've put myself on these tablets haha 😊😊

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