Pregabalin: Just been prescribed... - Fibromyalgia Acti...

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Pregabalin

lefraorchard profile image
15 Replies

Just been prescribed another tablet, I feel unsupported at our surgery, no pain clinic or physio referral it's just take the tablets get on with it.

How are any of you that take the above getting on with it I'm so reluctant to take it it says weight gain something I don't want some of the side affects are muscle pain which is what I'm suffering now?

Sarnie xxx

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lefraorchard profile image
lefraorchard
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15 Replies

It has taken me 3 attempts to get referred to a pain clinic and yesterday I was told I can go onto the waiting list to attend pain clinic. What happens in my area is the GP refers you to pain clinic then you have to attend a group meeting and fill out a questionaire to see if you are eligible to be put on a waiting list to attend a physiotherapist who then decides if you are depressed or not. If you are depressed they refer you back to your GP for treatment and if they decide you are not depressed they will put you forward to go on the waiting list for pain clinic. Its enough to make you depressed. Dont give up. Sorry for the rant. All this and I cant answer your question. sorry.

lefraorchard profile image
lefraorchard in reply to

Hi I appreciate your reply, it's good to know how the system works thanks xx

in reply to

It's bloody ridiculous all the faf we've gotta go through to get treatment isn't it,at the mo I'm in absolute agony,yrs ago u got sent to the specialist to get sorted,if this doesant ease up soon I'm going a&e

lefraorchard profile image
lefraorchard in reply to

I know, I saw one once, I've other illnesses cancer being one, so fibro was on the back burner, but now I'm suffering more so find it hard to get treatment........

in reply to lefraorchard

I'm sorry to hear that

It's a bit like that at my surgery,weeks ago I did a self referral have heard nothing mthey don't care,if ur over60 they don't care

lefraorchard profile image
lefraorchard in reply to

Hi, yes I'm over 60, it's interesting to talk and find out different peoples problems and advice, thanks

TheAuthor profile image
TheAuthor

Hi lefraorchard

I sincerely hope that you are feeling as well as you possibly can be today? I do not take this drug but I have pasted you a link below to the NHS Choices cache on Pregabalin:

NHS Choices - Pregabalin

nhs.uk/medicine-guides/page...

It may also be worth visiting a different GP to see if they are more responsive to your illness? Or even a new Surgery if things get drastic for you? I want to wish you all the best of luck.

All my hopes and dreams for you

Ken x

lefraorchard profile image
lefraorchard

Thank you for your information, this is a great site...

Mdaisy profile image
Mdaisy in reply to lefraorchard

Thank You for the lovely feedback, it is wonderful to read :)

WeezerSue profile image
WeezerSue

I was diagnosed with Fibromyalgia 16 years ago. Along with all the painful experiences I've gone through, I, also, have a physical sleep disorder and wear a CPAP every night. The last couple of days, I have been having what is known as ice pick headaches, along with tinnitis. Was prescribed hydrocodone 5-325. It hasn't helped much at all. I don't understand. Has anybody else had these type of headaches and, if you have, what medicine did the doctor prescribe for you that seemed to help?

lefraorchard profile image
lefraorchard in reply to WeezerSue

Hi, I've had these ice pick headaches, I'm now on pregabalin, hoping it helps with all the pain hope you can get help xxxx

Lauriescott1 profile image
Lauriescott1 in reply to lefraorchard

Thanks for your reply

glochessum profile image
glochessum

Hi, I take pregabalin. I have been on it for two years, only a low dose though 200mg a day. To be honest I don't think it does a lot of good for me apart from it helps with my rsl. The downside is ive put on nearly 2 stones which has really upset me.

Everyone is different so it may be beneficial for you.

nicnoc profile image
nicnoc

I have recently been prescribed pregabalin on a low dose and its not touching my pain at all. To get into my surgery takes 3 weeks.

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