This is my first post and I'd really like some suggestions from fellow sufferers
I've only been diagnosed with Fibromyalgia for a few months after suffering for over 20 years with widespread pain and fatigue. My most recent doctor didn't have a clue what my problem was but after going here, there and everywhere a physiotherapist thought I had FM and I was eventually referred to the pain management clinic. It was such a relief to be told at last after all these long, long years what was wrong with me. I'd never even heard of FM and now I know it's fairly well known. Why all those years no one could give me an answer seems unbelieveable!!!! The consultant prescribed pregabalin and I'm now on 300 mg/day. Although on the plus side I've had no side effects the down side is there haven't been any improvements either. In fact I've had some serious crashes (the last of which left me in bed for nearly 3 days and another 2 recovering) in amongst some very bad days. When I told my doctor that I didn't think it was working she suggested that I continue on this dosage for another 3 months which will bring me up to Nov. I've already been on this dose for 5 months so my questions are:
1) How long does it take for the drug to take effect?
2) What are the chances that increasing the dosage will be helpful, particularily with fatigue, which is my major concern?
3) Does pregabalin really help with fatigue and fatigue crashes because although the pain is a problem the fatigue is dibilitating. I've already had to leave a PhD due to the illness and have to go back to work soon (when my daughter starts pre-school). I REALLY can't hold down a job at the moment so I'm terrified.
My doctor doesn't really know anything about FM so I can't understand why the decisions have been left in her hands? Why don't we have follow up appointments with the consultant to review our situation after we are intially prescribed these drugs??? It seems crazy to me.
Any thoughts would be greatly appreciated