Help

Hello.

This is my first time on this site and it's so reassuring to read I am not the only one suffering this horrible condition.

It took me two years to finally get a diagnosis. I have had help from rheumatologist ,physio, hydrotherapy pool, living life nhs 24, my G.P. I was most impressed with my chronic pain team, they have given me so much support with finding the drugs that actually help which has taken a long time. They call me every few months to see how I am and suggest other/new techniques and advice. The physio help working on gaining my core strength which I lost completely. I feel stronger in general. The hydro pool was amazing when I was just starting the exercises.

My mood can be really low at times, a very distressing part of fibromyalgia, c.b.t therapy helps get your head round things and learn coping skills. I'm off my antidepressants now and pacing myself better.

7 Replies

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  • Hi Lel01 welcome to the site, you sound a pretty seasoned fibromite so I ather from your post you have been looked after well in your quest for support and knowledge.

    Thissite is the best full of really caring fellow sufferers who understand and respect your torture with fibro. This site is magnificent offerers opportunities to chat to pass the time of day or hust to be there for someone else. Our mother site is wwwfibroaction.org so do take a look it is filled with lots of useful information,

    Take care

    xgins

  • Welcome to the site you will find oeople here who understand how you feel and some good advice x

  • Hi Lel01

    I sincerely hope that you are feeling as well as you possibly can be today? Welcome to the forum, and it is wonderful to make your acquaintance. I genuinely hope that you find the forum useful, informative and loads of fun!

    If you have any questions please do not hesitate to ask?

    I genuinely look forward to bumping into you around the forum.

    All my hopes and dreams for you

    Ken

  • You must be your own advocate as you care more about yourself than does anyone else. As you seem to know, fibro is not a one approach illness. You have to do multiple things to get better.

    I have actually reversed my fibro with diet, cleanses, myofascial release techniques and now systemic enzymes (for excess fibrin, a build up of fibrin causes all finds of pain). I take NO prescription drugs except armour thyroid and no OTC pain relievers. I used to take Naproxin and anti-depressants everyday. All of this I discovered by spending a bunch of time digging around on google.

    I am following the AIP (auto-immune protocol) paleo diet. Sounds like you would benefit greatly from it. Dr Wahl was in second stage MS, in a wheelchair and she reversed her MS with it. Now she is out riding bikes. Impressive story. You can find her talking about it on a youtube video. Just search Dr Wahl.

    Good luck to you. If you do the work you will continue to improve. All is not hopeless.

  • Welcome to the site. It is wonderful to hear such a positive post about the NHS. I am afraid in my area the support just doesn;t seem to be there and there are long waiting lists just to get seen by a Pain Team and they are poorly funded so can only give limited treatment and advice which I know they feel guilty about. It looks as though you have been looked after in a very holistic way which seems to have done a brilliant job. It is wonderful to hear that you ahve been able to come off your anti depressants and that you are learning to pace yourself which as I know is a very difficult skill and it shows what a strong person you actually are. You will find this an extremely friendly and supportive site as everyone seems willing to help. I sincerely hope that all the treatments you are having will carry on enabling you to cope with this illness.x

  • Thank you all,for thee kind and supportive feedback. I feel this site will help me a lot and have already been given a few ideas, such as diet change and perhaps wee in myself off some meds. Thanks again. Chat soon for sure. :0)

  • Welcome Sweetheart!!! I'm glad you have such wonderful people helping you. It really makes a big difference. Plus we are all here for you whenever you need any advice or an ear or even a shoulder to cry on. It's a really great site. Wish I would have had something like this years ago when I first started having symptoms. Hope you continue to do so well!!! xxxx Mitzi

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