Hi all, hope today is one of the less evil ones.
I am at my rope end, saw gp yesterday as I was discharged from Rheumatology dept because they referred me to Surgical.....Surgeon will not give me new knees so did as rheumy told me and asked gp to refer me back to him. Gp said waste of time so referred me to musculoskeletal physio team.
That will be another waste of time as I cannot exercise much at all....been to physio who told me unsuitable for land based physio so gave me five sessions in hydro pool which helped in general but you are only allowed five and no more
I feel that no one wants to help now....am on buckets of meds for pain etc but dont know who to turn to now.
I have FM, MS, Hashimotos thyroid disease, hypermobility, PA, diabetes type 2 , had TIA awhile back, angina. I know I sound like a hypochondriac but I am not....these illnesses have all been diagnosed properl and of course several are auto immune diseases so if you got one you are more likely to have another.
Sorry for rambling on, just feeling as if no one is listening to me in NHS anymore. Just giving me more pills.
I have had anti depressants but off atm .... of course I,m depressed sometimes because I have a lot of pain and daily living issues.
I can do little jobs for 10/15 minutes then get dizzy, nauseous and feel faint.
I overheat..common broblem in both FM & MS a hundred times worse than menopausal flushes.
For eg peeled about 6 apples to make a pudding...had to lay down with fan on full for about 45 mins till I could carry on. Thats how it goes.
I sound like a real moaner if I try to explain all this to gp or anyone.
Any ideas of what to do next would be truly welcomed, even if you think I should put up and shut up.....just be honest please. I need honest comments.
Thank you for reading this long strange post.