Hi guys hope you are all doing as well as can be expected with this awful condition. I haven't been on here for months as things have changed so much for me and not in a good way. I was wondering if anyone has or is going through the same as myself. I do have fibromyalgia but 5 months ago I woke to a strange feeling in my legs and later that day I couldnt walk properly. By the next day I had tremors basically all over and walking was a disaster. I spent a week in hospital had a brain scan which thank god showed nothing. To cut a long story short I've since had a spinal MRI which again was clear. I am due to hospital this Thursday for a lumbar puncture and the following thursday for an EEG. I have got worse over the past month which has meant I'm having to use the wheelchair more than my crutches. Patiently waiting to see a podiatrist for the way in which I do walk which is with a wide gait and my right foot drags, pain from back to soles of feet is awful and I cant walk in a straight line at all I steer off to the left all the time and its all mentally draining. I attend physio every week which is very hard. I have a brilliant neurologist who I saw last Thursday. He says fibromyalgia can do this but is very rare and if these next 2 tests show nothing then i have to travel alot further to another hospital to see another neurologist. All I can do is wait but its worrying and scary. I was wondering is there anyone else out there going through the same or been through the same. I feel like am living some nightmare I still cant take it all in.
Hugs to all