has anyone experience the same as I have.

[jane222]

I have bi-polar fibro and was recently told I have Chiari malfunction this is to do with the back of brain and into back if it goes any further down I will be unable to walk could someone tell me if these are connected and has anyone got these same illness.

[charlii]

Hi Jane, yes, chiari and fibro are in the same family but they dont know why. I too have chiari and the symptoms can be confused with fibro. Have you seen a neurosurgeon yet? It is operable in nearly all cases although it is a major procedure but if you have no choice then you may have to go down that road im afraid. My chiari is stable therefore no treatment is needed that i dont already take for the fibro but bizzarely my best friend also has chiari and she had the op 2 years ago. There is lots of info on the net for chiari and also support groups too if you need to talk to others in your situation.

Many doctors know very little about chiari and other people know even less but i just say to people that my brain is too big for my skull which is usually met with hoots of laughter! Please let me know how you get on...much love....Charlii xx

[Mdaisy]

Hi Jane,

Thank You for this interesting question and I have to be honest I personally hadn't heard of this before. Please tell us more about the condition and the symptoms you experience , if you feel you would like to. I have posted the link below so we have some understanding of Chiari Malformation.

nhs.uk/conditions/chiari-ma...

I wonder whether any of the rest of the volunteers of Fibroaction HU have had any experience or heard of this ? Their comments will be of interest.

From a quick Google it does appear many sources appear to mention it has association with Fibromyalgia. However, without reading extensive research of many medical articles, I would not like to say comment either way at the moment.

It is a very interesting thread and look forward to checking in on it over the course of the next few days.

Happy New Year

Emma

[jane222]

I went to a consultant on another problem and he noticed I was off balance quite a lot ,he got me to have a MRI scan ,first scan showed something was wrong they needed another in depth scan which showed I had Chiari malfunction .I am gradually losing balance a lot .Went to my GP, he is going to do some tests then probably another scan. Happy New Year. Margaret.

[charlii]

To give it its full title....Arnold Chiari Malformation....mine is type 1 xx

[Ozzygirl64]

Right, sorry for the delay in replying, had the page open for a while but I had to go and read up on it before I made any attempt to answer, I find a few things in the symptoms have hit home mpre so the balance problems. I had never heard of it until today but I would say I do not have it as I do not want it. I am now wondering how you cope with that on top of everything else. My balance is a huge problem for me and I just blame the fibro xxxxx

[jane222 in reply to Ozzygirl64]

go and have a MRI scan done and that will tell if you have it . Thanks for your reply.

[Ozzygirl64 in reply to jane222]

Had MRIs done in July and they said 'nothing signoficant seen', so that is that then, I am clear from that. It must be hard for you to cope with all the extra stuff xxxxx

[jane222]

It is very hard at times but we have to keep going on . I am so glad that you have nothing wrong after the MRI scan good news I try to keep optimist for what else can we do. Hope to hear from you again,

so God bless and try to keep smiling .