Why such a flare? And the fatigue......unbelievable!!!

I have gone in to a terrible flare!! And have the most unbelievable fatigue. I've had many flares before. But this fatigue, it's wiped me out. I have managed to get up for a couple of hours this morning, then had to go back to bed. I got up to have dinner with my family, then back to bed, exhausted.

Do others get this extreme fatigue? I feel lazy, but I just am to tired to even fight it.

15 Replies

  • Yes it leaves me like this too. Terrible terrible pains and such tiredness!

  • Never consider yourself lazy, we all have times like this and you just have to go with it, it is not ordinary tiredness. I don't understand the mechanics of it at all but I get days when I can't get going I don't worry about it either, this is a long term illness with weird and not so wonderful symptoms, some creep up on you others hit like a brick. So no, you are not lazy. Take care and rest if you need to. XX Lou

  • Thank you Lou69 and lottieonline. I really appreciate your replies. I hear what you are say lou69, I will try to think of it that way. I've had fatigue before, but nothing to this degree! It's so hard this illness, especially as most go us seemed to be get up and go people before fibro arrived.

    Hope you both are having the best sort of day you can. Gentle hugs x

  • Lizzy, I hope you are feeling some better by now. I get this too though not so bad, usually in the afternoon, have to nap, and feel awful when I wake up. Oh well. I love what lou wrote: weird and not so wonderful symptoms.

    CFS is so similar; sometimes I wonder if those who have worse fatigue might have CFS and fibro. Is that possible?

    Any thoughts on this?

  • Sorry to hear you have flares too.

    I, like you, go and have an afternoon nap/rest, and feel awful afterwards. So it was comforting to hear you say you do also. (Although obviously, sorry to hear you do). I keep thinking to myself, well if I have had a sleep, I should feel better, it's so weird this condition. It makes me want to soldier on, but again I know I will pay double for it tomorrow!

    I hope you are not feeling too bad today and manage to get out into the sunshine. Gentle hugs x

  • Yes Clare I was diagnosed with M.E. years ago and in recent years after having to have some unrelated operations I have also had Fibro. ..so they say. To be honest I can't see much of a difference between them both and got excited (well you know what I mean) until I found out that the treatment suggested for fibro is much the same as My Usual....I.e. nothing really...pff


  • Hi Lizzyear

    I am so sorry to read that you are suffering from a flare up at this time, and I genuinely hope that you start to feel more like your usual self again soon. I do suffer from terrible fatigue at times, and it's not like I want to sleep or anything, it is more akin to not having the energy to move?

    I have experienced this on many occasions and if my wife needs anything I have to fight to move, and I could just burst into tears sometimes! Which would not be good for my wife to see how I am struggling? I also do not understand how this can possibly be happening to me, as I am taking 10mg of prescribed steroid daily so I should definitely not be feeling fatigued, at all, ever!

    I was wondering if you had a good relationship with your GP? As there are medications that can be prescribed to help combat fatigue. My wife suffers with MS, and fatigue is a major issue for her, and she has been prescribed a drug called Amantadine to help fight fatigue. I do not know if it would be worth discussing this with your GP or Specialist?


    Amantadine is an antiviral medication used to prevent or treat certain influenza infections; it is also given as an adjunct for the treatment of Parkinson's disease. It has been demonstrated that this medication is sometimes effective in relieving fatigue

    I want to wish you all the best of luck with this, and I hope that your flare does not last too long.

    All my hopes and dreams for you

    Ken x

  • Hi Ken,

    Thank you for your reply. I have not heard of Amantadine, my GP is lovely, very up on fibro! Sorry to here how much you suffer from fatigue, it must be especially hard, when you are looking after your wife as well. Bless you:-)

    Gentle hugs x

  • Yes I get it. And it wipes me out I am always in agony and was told on the 8 Aug ii had fibromyalgia and chronic fatigue at the pain clinic. They want me to go pain therapy and tobsee a rheumatologist but the doc at the pain clinic said he will tell me the same

  • I went to the pain clinic for the first time a couple of months ago.the consultant was lovely and seemed to have great empathy for people with fibro. It was great not having to describe in great detail all the different pains and difficulties we have, she really seemed to understand. She started changing my meds, got me in on the group trying tens machines. Organised me to go to a group meeting of fibro suffers, so we can all discuss our situations and struggles and for me to see occupational health also. So I would. Highly recommend the pain clinic by my experience. Good Luck. If you have only recently been diagnosed, stay with it. It's all very daunting and quite surreal to start with. Everyone here is so helpful and supportive, so you found a good group. Gentle hugs x

  • hi girls

    sorry lads, but does fibro get worse during your monthlies. If so have you found anything that helps?.

  • Hi,

    I don't have that problem of monthlies anymore, had op to stop them as suffer bad aneamia. Sorry I can't help, but I am sure there will be others who will be able to help. Hope your not suffering too much. Gentle hugs x

  • Hi kate_penney

    I genuinely hope that you are feeling as well as you possibly can be today? I have pasted for you 3 links below from previous discussions relating to ladies issues and Fibro, so I hope that you find them useful:




    All my hopes and dreams for you

    Ken x

  • Im having terrible backache in my right side as i send this reply to you Lizzyear It feels terrible and i do feel very very tired. Your not lazy.

  • Yes I definitely have days where I feel lazy and get upset. I can make a meal for the family about once per week usually and for the past few have been unable to do even that so bandied about the L word only this evening. ...to be honest I think my kids prefer it like this as they can open themselves some tins and not have to suffer healthy 'rubbish' Pfffff ;)

    ♡♡♡♡ TO YOU XXXX

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