Has anyone heard about this - Fibromyalgia Acti...

Fibromyalgia Action UK

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Has anyone heard about this

Linco profile image
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Researchers have found the main source of pain in Fibromyalgia patients, and contrary to what many believe, it does not stem from the brain. The findings mark the end of a decades-old mystery about the disease, which many doctors believed was conjured in patients’ imaginations. The mystery of Fibromyalgia has left millions of sufferers searching for hope in pain medications. Up until recently, many physicians thought that the disease was “imaginary” or psychological, but scientists have now revealed that the main source of pain stems from a most unlikely place- excess blood vessels in the hand.

The discovery may lead to new treatments and perhaps even a total cure in the future, bringing relief to as many as 5 million Americans thought to have the disease. To solve the Fibromyalgia mystery, researchers zeroed in on the skin from the hand of one patient who had a lack of the sensory nerve fibers, causing a reduced reaction to pain. They then took skin samples from the hands of Fibromyalgia patients and were surprised to find an extremely excessive amount of a particular type of nerve fiber called arteriole-venule (AV) shunts.

Up until this point scientists had thought that these fibers were only responsible for regulating blood flow, and did not play any role in pain sensation, but now they’ve discovered that there is a direct link between these nerves and the widespread body pain that Fibromyalgia sufferers feel.

The breakthrough also could solve the lingering question of why many sufferers have extremely painful hands as well as other “tender points” throughout the body, and why cold weather seems to aggravate the symptoms. In addition to feeling widespread deep tissue pain, many Fibromyalgia patients also suffer from debilitating fatigue.

Neuroscientist Dr. Frank L. Rice explained: “We previously thought that these nerve endings were only involved in regulating blood flow at a subconscious level, yet here we had evidences that the blood vessel endings could also contribute to our conscious sense of touch… and also pain,” Rice said. “This mismanaged blood flow could be the source of muscular pain and achiness, and the sense of fatigue which are thought to be due to a build-up of lactic acid and low levels of inflammation fibromyalgia patients. This, in turn, could contribute to the hyperactivity in the brain.”

Current treatments for the disease have not brought complete relief to the millions of sufferers. Therapies include narcotic pain medicines; anti-seizure drugs, anti-depressants and even simple advice such as “get more sleep and exercise regularly.” Now that the cause of Fibromyalgia has been pinpointed, patients are looking forward to an eventual cure. Other expressed frustration about how much they had suffered already:

“When are they ever going to figure out that things are never “all in your head?” said one commenter. “Whenever something doesn’t fit in their tiny little understanding, they belittle the patient and tell them they are crazy. People have suffered through this since they were invented. Prescribing SSRIs for everything is not the answer any more than a lobotomy or hysterectomy was.”

The announcement has the potential to unlock better future treatments and undoubtedly has patients all over the world rejoicing that the mystery of Fibromyalgia has finally been solved.

RELATED: Fibromyalgia: Proof of Physical Origins Vs. Two Danish Psychiatrists

Read more at guardianlv.com/2013/06/fibr...

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Linco
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5 Replies

I had read an article a while back, it may have been the same one. I don't think it will help much until they actually start doing something with it :)

rosewine profile image
rosewine

Yes I read this article on an American website. The trouble with fibro it isn't one of these fashonable illnesses and therefore there isn't much money involved in it for the drugs companies so whether they will go ahead with more in depth research and find something that will really help us rather than masking some of our symptoms we wait and see. It is also the case that America does these things first and it seems to take years for anything good to filter into Great Britain. Any way fingers crossed that something good will eventually come of it. Thanks for posting itx

From what i read some researchers are not sure if it is the cause of fibro or another symptom, though it may help with diagnosis..

Hugs sue xx

TheAuthor profile image
TheAuthor

Hi Linco

I hope that you are well today? I have read two separate reports that equate this to Fibro, and one of the reports actually states that it could be another symptom of Fibro and not the cause? Either way, i would be very interested in getting to the bottom of it?

thank you for sharing this with us all.

All my hopes and dreams for you

Ken

B2WC profile image
B2WC

Hi Linco,

I always love to read the result of clinical trial from scientists, because they always try to share their unbiased view without putting significant determination result, we just have to wait don't we?, because if it true, can you imagine any giant pharmaceutical company such as AstraZenaca or Pfizer will certainly produce that product and make billions profit and sale it world wide, wouldn't they?, how many people in the world are suffering with this condition?, if you look in term of their language it is quite ambigous, they use the word ''may lead to new treatments and perhaps'' .......(uncertainty..)......, so,,, but still..like Ken was stipulated, it is encouraging..let's hope for the best, but thanks for this article, I really enjoy reading this type of knowledge it is excellent and very useful.

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