Largely left side pain & weakness.

[jellynpain]

Hi all,

My weakness and pain is often predominantly through my left side (not completely bu markedly worse).

I had a sudden event of total immobility to the extreme and hospitalized (sometime ago), but left worse then too.

Anyone similar finding problems worse one side?

Xx

[rosewine]

Hi

You are not alone. Even though they tend to say that for fibro you get it in all four quadrants of the body there are alot of people on here that find that one side is always worse than the other. You would think that if you are right handed with all the extra use it would be the right hand side but often it is the left. At the moment the left hand side of my body is zinging away. I had to fill in a questionnaire as part of some Pain Study and decided I could better do it sitting at the table which I don;t usually do and am now totally regretting it. That period of immobility must have been very frightening for you and sincerely hope that you don't have any more episodes and you are feeling better soonx

[jellynpain in reply to rosewine]

Hi Rosewine,

Thank you so much for your reply to my post.

Yes..I am right handed and get predominantly a great deal more problems with my left side (though not totally left).

My total mobility to that extreme took some time to improve. I still have very poor mobility, pain etc. and considerably life style restricted but thankfully not to the point of that extreme episode .

Acceptance of my diagnosis's I believe was imperative to my coping. I often remind myself "it could be worse" .

So the glass is half full not half empty

[rosewine in reply to jellynpain]

I'm usually that type of person too but occasionally the glass gets absolutely drained and needs refilling. I have just filled in a study about Chronic Pain and Loss and the future and it likens the acceptance of Chronic Pain as a grieving process rather like we go through when we lose someone we love and all the different stages you go through. When I did the exercises and really thought about what I have gone through in the past 5 years it has been quite a journey and of course that journey is still ongoing. Hope both of us reach the end relatively in one piece and can keep on seeing some of the positives that sometimes happens when we are forced to slow down and smell the rosesx

[jellynpain in reply to rosewine]

Hi again,

Well done you for getting through that and having to go over years of suffering. Do you think in some ways it has helped or not?

I think I was mentally fighting myself, but on top of that I encountered some awful, uncaring Dr's. I couldn't get my head around them at all, now I don't give a hoot about them. They can't all be bad can they?

[rosewine in reply to jellynpain]

Yes I think it has because it made me reflect on what I have been through and how absolutely terrifying it was initially and how mortifying it was to have to leave a job i absolutely loved. Then I could see myself going through this grieving process and somehow coming out of the other side with some sort of acceptance of my lot and that it could be worse and I have got to make the best of what I have now and not keep on harping back to what was before. I had a very understanding doctor of 30 years standing but I don't think the young doctor who has taken his place has the same understanding of the problems and initially seemed to think everyone was drug seeking. He seems to be coming around to the idea that I am not when I stopped some tablets he wanted me to come off in a very short space of time and I don;t think he quite believed I had done it. I also thought something was osteo based and he said he didn;t think it was but bursiritis and I was proved right so I think he is a bit more conducive to listening to me now.

[jellynpain in reply to rosewine]

I have a very supportive gp..it's the Consultants that so often lack listening skills (that's what I call it anyway..today that it teehee).

I tried hard for a year to hang onto my job but they ill healthier me out of contract. Devastated and angry at the time but looking back... lets say that didn't go about it nicely but it turned out to be essential to my health. Very frustrating as always worked. Xx

[rosewine in reply to jellynpain]

Exactly the same happened to me with my job.

[jellynpain in reply to rosewine]

Amazing how one minute considered a good employee and the next..gone! Seemed so bad then. X

[Hidden]

Hello

I posted a question a while go about this, my problem is

Worse on my left side.

I'm right handed, I asked if that was so with most people

Worse left side right handed

Worse right side left handed

And it seemed to be so.

When people have strokes, it is the same a right side stroke on

The brain effects the left side.

And left side effects the right, I will not go onto the front or

Back of the brain as it gets complicated.

Of course I'm not saying that we ate having a stroke as we

Are not.

But it does make you wonder if some way it is connected

With the brain, I expect it's rubbish but who knows.

Love viv

[rosewine in reply to Hidden]

No Viv I don't think it is rubbish. My husband and I had a laugh today as for some things like spelling which I used to be excellent at my brain seems to have disintergrated but for numerical things which I used to be the pits at and he was excellent at I have suddenly become rather good at doing mental calculations and he has become hopeless, he has epilepsy now by the way. We are wondering whether different parts of our brains have died off and the other parts are starting to compensate if you get my drift. I am sure in fibro it is as though the wiring has become disconnected and then reconnected in a different way.

[jellynpain in reply to rosewine]

Hi Vic,

I was initially suspected of a stroke, Ms etc. Eventually diagnosed cfs/me, other organic things and finally Fibro as pain came later.

I no longer can differentiate what or when I am suffering which. One things for sure, proves there's very little meaning to a conditions name!!

[TheAuthor]

Hi jellynpain

I am so sorry to read that you are suffering in this way, and I genuinely hope that you can find some resolution and relief to this issue. I have greater problems on my right side but its not entirely due to my Fibro as I have sciatic nerve damage. It is difficult to say if it would be worse than my other side if I didn't have the nerve damage?

I want to wish you all the best of luck with finding the answers that you so desperately desire and deserve.

All my hopes and dreams for you

Ken

[jellynpain]

Thank you for your well wishes.

I have other diagnosed conditions too with likely overlapping ailments.

Best wishes.