Fibromyalgia Action UK
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Hi everyone, I haven't posted for some time but thought I would get some support here.

Had fibro for 16 years following the Human Parvo Virus but this last couple of years have been the worst. Problems with bladder, stomach , now galstone trouble, fingers twisting aching and loss of power and depression.

Had my benefits stopped because the ESA year is up, my husband is working therefore I am not entitled to anything, is this true?

Loosing £400 a month makes a huge difference to our lives as I am sure it would most peoples lives. Was at a job centre interview last week and it's a joke! All they want to know is gave u applied for jobs, are u looking for a job, are u going to be looking for a job? My reply was unless a miracle happens with my health then NO.

How is everyone else getting by!

I have spent today in bed sleeping, body feels like it's been hit by a bus. My head just wants to shut down and stop thinking/worrying.


8 Replies

Hello Karen, so sorry that things are going badly for you. Have you thought of trying for PIP it is would go along way towards helping out money wise. if you take a look on the main site there is a section about benefits and how to claim them.

PIP is payable to anyone between the ages of 16 and 64 and income is not taken into account It all depends on your degree of disability.

It is a difficult benefit to claim so getting someone like the CAB to help with the forms can make a big difference.

Good luck. hugs sue xx


I was going to suggest pip, but Mayrose has beat me to it. I am awaiting decision, had medical interview 4/5 weeks ago, was much less scary than i thought and nurse was very well informed about fibro as well as athritis and chronic migraines with which I have to live. Best of luck,


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Hi karencw

I sincerely hope that you are feeling as well as you possibly can be today? I am going along with the others as PIP is a non-taxable benefit and is payable on your disability regardless of whether you or your husband are working or not.

I have pasted you the link below to the GOV.UK page on how to claim PIP:

I want to wish you all the best of luck with your claim.

All my hopes and dreams for you

Ken x


Morning karen. I was in the same boat as you husband works. So esa money stopped after 365 days. I rang the DWAP and asked why can i not claim in my own right as always worked part time or full time was told needed fill in forms to get into the ESA support group. Had to have medical. scored 0 appealed was put into work active group. appealed again and won in all took 12 mouths but got all back pay now get 108 a week which helps a lot Please go CAB they helped me so much with filling in forms and advice. I have just been a warded PIP for both mobility and care. You do have to sometimes fight but it is worth it as loosing your money will cause you more stress Your health problem sound just like mine . I was suppose to have my Gallbladder out on saturday but was cancelled And mine started with a virus So ring them ASAP Let me know how you get on. Good Luck xx

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I am fighting for the care component at the moment. As according to the decision maker I do not have a health problem that causes cognative disfuntion. ?

HELLO try looking up fibro symptoms.


Hello Karencw,

I would consider speaking with the Citizen Advice Bureau about your individual circumstances and they will be able to tell you what you can claim for. Personal Independence Payment is the benefit taking over what was DLA, if you'd like some information guides on PIP please do email us using

if the guides can help reduce worry this will hopefully lessen the impact on your condition as Fibro responds so badly to stress, you are most welcome to email us.

I look forward to hearing from you .

Best Wishes

Emma :)

FibroAction Administrator


Thank you all for your replies. I just feel defeated, I am so tired of fighting my corner and just want to give up. X

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I have made an appointment with local cab office this Friday. Thanks guys.x

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