Shaking on the inside a Wierd feeling. - Fibromyalgia Acti...

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Shaking on the inside a Wierd feeling.

Castlepoint profile image
23 Replies

I hope that I can find someone who has a similar experience as I have been having. Every so often I sort of semi wake in the morning and have this strange feeling as though I am shaking in the upper half of my body. For some reason I know that is not external but it is really strange , I can't seem to stop the feeling as I am not fully awake. I have Hashimotos,s & fibromyalgia is there a link at all?

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Castlepoint profile image
Castlepoint
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23 Replies
hamble99b profile image
hamble99b

hi castlepoint, my back shakes sometimes, I wonder if it could be that? I would always advise checking out new or worsening symptoms with your gp.

have you checked out hashimotos on another hu forum vasculitis uk?

regards,

hamble.

rosewine profile image
rosewine

Hi Castlepoint

I have had something similar a couple of times, I also I often get a sensation down my spine when I have been lying in bed and occasionally when sitting back on a soft chair like my spine is alive and as though there is a heart beat there. My doctor said it was from the nerve endings if a nerve gets partially trapped and gets irritated. It is unpleasant but since I have had that explanation I haven't felt so worried. Have you spoken to your doctor about this, it could also be a side effect of one of your drugs.

TheAuthor profile image
TheAuthor

Hi Castlepoint

I am so sorry to read that you are suffering in this way, and I genuinely hope that you can find the answers that you are looking for? I do not have this sort of problem, but it really does sound horrendous?

I really would discuss this with your GP just to rule anything else out and hopefully your GP can give you an explanation as to what is happening for you?

All my hopes and dreams for you

Ken

Uninitiated profile image
Uninitiated

I think I have experienced that. SOmetimes when I wake too fast, I shake inside, but I don't think it is perceptable to others. I breath through it, also when I feel my heart flutter... I take slow breaths. It seems to be transitory and go away after a minute or so. Love the compassionate fellow answering "All my hopes and dreams for you" too

Ken.

TheAuthor profile image
TheAuthor in reply toUninitiated

Thank you, that is such a beautiful thing to say.

All my hopes and dreams for you

Ken

Fibrofoggiest profile image
Fibrofoggiest

Hi, I definitely get the feeling of a strange shaking going through my body, but normally mine happens when I stand up, but it does feel like my body is shaking on the inside and it feels like someone watching should see waves going through my body, if that makes sense, which it probably doesn't . However, I would strongly urge you to discuss this with your GP who may be able to throw more light on whether it has anything to do with your Hashimoto's or any other thing which might be causing it.

Sending positive healing vibes your way :-)

Foggy x

RIBBONPINK profile image
RIBBONPINK in reply toFibrofoggiest

i experience the same shaking like a jelly fish,my arms jerk,even my head is shaking.and that causes neck strain.then it will just stop.crazy reallyx

Milynda profile image
Milynda in reply toFibrofoggiest

Mine happens when I experience any kind of stress or going too fast. When I try to get up too fast I visibly shake. I have just had an MRI for this as it was getting so bad I would fall down. That seems to have subsided a bit.

All the best.

pip_r profile image
pip_r

Hi Castlepoint,

I too have a strange shaking/vibrating sensation inside my body, usually happening when I've just woken up. I often have it, but not all the time. At first I thought the bed was vibrating and I wondered what on earth was happening. However, I eventually realised it was me. I did some reading to find out if others suffered with it and there were definitely quite a few people who experience something similar or the same. I have to admit I don't worry about it now and just wait for it to go. I'm sure I spoke to my doctor about it and I think we concluded it was related to my sleeping disorder. I've had a few weird things happen on waking up. However, it's always good to have a chat with your doctor about any new symptoms you experience. They can either reassure you that it's nothing to worry about, or look into it in more detail if they think it's necessary. It is scary though, so I don't blame you for being a bit freaked out by it. I know I was. I seriously thought my partner was moving the bed somehow when it first happened. Looking up 'internal vibration or tremors' throws a up a lot of information, which at least highlights there are a number of people who suffer from it. Talking to your doctor would be the way to go though I think. All the best.

Pip xx

mitziblue profile image
mitziblue

It may be that your med's have started to give you a reaction. I used to be able to take everything, slowly over the years I'm now unable to take lots of med's. Hope this helps sweetheart!!! xxxx Mitzi

caroline47 profile image
caroline47

I sometimes feel like i am shaking on the inside

nadine111 profile image
nadine111

there might be. so hard to tell with fibro. i, too, have that weird shaking feeling inside but don't get it until mid-afternoon and into the evening. it can get so bad that i just go to sleep earlier than normal because can't stand the feeling. anyone have any suggestions for castlepoint and i?

babyinny profile image
babyinny in reply tonadine111

I have been doing deep breathing excercise seems to help slightly it is very frightening feeling Nadine

Castlepoint profile image
Castlepoint

Thankyou for all the informative comments it's re-assuring that I'm not alone in feeling these things. Xx

rocaro profile image
rocaro

hello, I have the same or similar symptom, for me is like a soft electric shock flowing thought my body, specially the upper part. I imagine it has to do with the nerves. It happens at any time, but it gets worst when laying down. I have been taking amitriptyline for quite a long time and that sensation went down considerably. Lately, I had been feeling much better, so I stopped taking amitriptyline. For the last 2 months I had been feeling well with almost no medications. Until 3 days ago. Suddenly all the symptoms came back, especially the internal electric shakes. I have them right now. I am back on the amitriptyline and I think is helping.

Hope you get better

RR

Castlepoint profile image
Castlepoint in reply torocaro

Thankyou for your reply RR, I have been prescribed amitriptyline but have not taken it yet - maybe I should take it. I hope that you are feeling better soon.

Castlepoint

Lizzie57 profile image
Lizzie57

I get what I call the shakes I feel all shakes on the inside but it doesn't show on the outside, take deep breaths I find that helps,I hope it helps you.

ran13 profile image
ran13

hi. i have had this feelings to sum times i have had it in my legs and feet and in my body . i think their is a link to fibro.xx

babyinny profile image
babyinny in reply toran13

I am plagued with vibrating just got home from work the muscle stiffening in my torso was horrendous thought I wasn't going to make it home now I have lay down my muscles a shaking like mad does anyone else get this

Milynda profile image
Milynda

Is everyone who is getting this on Pregabalin or is it the fibro?

babyinny profile image
babyinny

I am not on any medication and have been plagued with this shaking sensations over the years I am told it is all part and parcle

hana2191 profile image
hana2191

I actually have the same experience as you do but mine starts when I sleep late and while falling asleep I would suddenly be awakened and there, I would feel like I'm trembling inside. I think stress and drugs that we're taking cause it.

Also before I have my menstrual period, this trembling inside is more likely to appear. Maybe hormones are also to be blamed here.

But I think there's nothing to worry about if you have been feeling that kind of thing. You just need to start getting used to it until it gives up and goes away. Mind is always powerful than the body. So tru to be positive about it.

Stay healthy. All best.

Hannah

toots75 profile image
toots75

Hi I've just read your question and feel I have exactly the same, i also have fibromyalgia, the feeling is hard to describe it's the weirdest sensation, you feel yourself shaking right through your arms and upper body, this happens to me if I'm having a really low day with no energy and drifting in and out of sleep. I though at first it was my blood sugar levels but after checked they were fine. When I put my hands out you can't see me physically shaking but I'm definitely feeling it inside. I also get involuntary twitches that I don't even realise I'm dong until its pointed out. I hope this helps in letting you know that someone may be experiencing the same shaking as you. Hope you keep well. :)

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