Hi I am newly diagnosed and still getting used to this condition. This morning I woke with severe pain and reflux. I was cold but covered in

[jaks60]

sweat. I got up but could not cope with the overwhelming fatigue. I could not fight it and ended up going back to bed. I now feel frustrated that i have wasted this day sleeping. Can anyone relate to this? Thanks Jaks x

[hamble99b]

Hi jaks, I often have days when all I can do is sleep.

if you are new to med's, they can take a while to get used to too.

take care and be kind to yourself.

come on here and talk to us - we're a friendly group.

ask questions and if we can help, we will.

email emma,

[e-mail]

and ask for the fibro info sheets, you may find they help.

keep in touch.

regards,

hamble

[jaks60 in reply to hamble99b]

Thankyou for your reply hamble99b. I have managed to find a lot of information at the website you sent me .Thanks Jaks

[TheAuthor]

Hi jaks60

I am so sorry to read that you are struggling in this way and I genuinely hope that you can find some resolution and relief to this issue.

As hamble99b has said, it happens wit Fibro, and of course, medications can also affect you in this way. So if after a good try with any medications this keeps happening, it would really be worth discussing the issue with your GP.

All my hopes and dreams for you

Ken x

[Hidden]

Hi Jaks i have been an active sports man and have worked hard all my life ..since i have been diagnosed with RA i find fatigue is a big part of this illness ...worst part is i look fine on the outside but inside is pain and tiredness..it takes time to adjust to this illness and i have learned from that i have to take things easy and when i feel good to try and do the things that need doing chores etc...fatigue has nothing to do with medication ...i cannot take metatrexate ar sulphlizine due to micro nodules on both lungs ...so only pain killers ....last thing i want is my lungs to fail so hence just pain killers...but fatigue is a big part of RA..dont feel bad if you just need to sit down or lie down at any part of the day thats how this illness works and its a sudden lack of energy so go with it and so what your body tells you! ...i hope this has helped ..paul

[jaks60 in reply to Hidden]

Thankyou for your reply Paul. I like you have lived an active and hardworking life and because you do not look "ill" former colleges, friends do not understand. I am lucky to have the support of my family but still feel very isolated.and finding it hard to come to terms with this condition and its limitations. Talking to people on this site is definately a great help. Jaks

[Reykua]

Hi Jaks60,

Diagnosed three years ago and still have days when all I can do is sleep - there've been times when I'm shocked at how much I've slept but still have the strong urge to sleep more as I feel totally unrefreshed!

I left a full time job to go part time and had to eventually take redundancy as I just wasn't coping. My GP eventually referred me to a Managing Your Health Condition workshop and Pain Management Workshop. Both have been useful, together with ongoing counselling but I still struggle to come to terms with this weird ailment.

Three years on and 'experimentation' with different combinations of meds and things only appear to have progressively worsened even though I'm extremely proactive in seeking out and trialling a variety of natural and homeopathic remedies as well. In truth, I'm still hoping for some sort of magic bullet, a definitive report detailing the cause and/or some way of effectively managing the wide and varied symptoms without having to resort to so much medication or full acknowledgement from the DWP and health professionals that is a REAL condition that requires more research.

I'm learning more and more each day from others on this site and I'll finish by saying that you are definitely Not alone, no matter how long we've all had it, it still somehow feels like it's New to all of us from time to time - especially when fresh symptoms pop up so, Welcome to the forum, don't be discouraged by my initial rant, look for the positives in your personal situation and strive to support us in educating the health professionals, employers, researchers, drug companies, family and friends about this condition.

In some ways, we're a rather special and Elite group of guinea pigs.

Wishing you less drowziness and better health/coping skills

Stay Strong and Stay Positive

Fight the Fibro

[jaks60 in reply to Reykua]

Thankyou for your reply. I agree this site is a great help. It is a strange thing this fibro and hard to explain if you are not actually suffering with it yourself. I am slowly coming to terms with it and can only hope to learn how to cope better. It is good to have understanding and like minded people to ask questions of and talk to Jaks

[RIBBONPINK]

Hi i know how you feel.terrible weakness in legs and arms.sweat all the time when i move.been lying on my bed just eat and sleep i lose track of time,luckily my husband helps me.he works a lot,my pets keep me going when he is working.i use my wheel chair a lot now,i walk on good days.the constant fatigue.i know.i have a great strength in prayer,i will pray for everyone here.take carexx