Hi I am on dla and have got my forms to fill in for pip , my dla is not yet up but they still sent forms out

what I want to know is ....... they any info I can send them along with my own info ie something I can print off fibromyalgia site to put along side the forms as it seems from what I have read , heard they don't know that much about fibromyalgia or maybe they choose or don't want to know about our illness I have the best gp in the land and he will be writing to them once they contact him but would of just liked to have added something with the forms any info or help would be great thanks

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  • Hi jane59

    I sincerely hope that you are feeling as well as you possibly can be today? I have pasted you a link below to the FibroAction information pages that you can download. However, I would be more inclined to get as many health professionals that you know to give you a written statement of how your illness affects your everyday life?

    As we are all unique individuals, we all have a differing intensity to our illness and our medications. I believe that the DWP will assess you and not the illness on a piece of paper?

    fibroaction.org/Pages/About...

    I want to wish you all the best with your claim for PIP, and if you need any help or assistance with your forms, please send a private message to the site administrator Mdaisy, who will be more than happy to advise you.

    All my hopes and dreams for you

    Ken x

  • Can I just add to Ken's message -

    if you get letters of support from the medics, please make several copies before you send tgem off.

  • That is really sound advice, thank you very much hamble99b it is greatly appreciated, I should also have suggested this. Good luck jane59 with your claim.

    Take care

    Ken x

  • That's good advice, DWP lost all mine and I had to go and pay for them again.

  • Hi you need to supply as much info as possible on how your condition affects your daily living ie Motability / personal and public . There Is nothing wrong with sending a print out of fibromyalgia of the NHS. Web site or another uk based company . Even send a daily diary of how it affects you from sleeping to going back to bed . Please look up fightback on the web there is a lot of good info on this site on how to fill out and what to send to them . Good luck

  • I found that having a list of al fibro symptoms and ticking off those that you suffer from, perhaps adding notes as to how each one affects you is useful. It also serves to provide proof that the symptom is related to fibro. I was questioned as to wether cognative difficulties are a symptom of fibro.Luckily I had this list as proof. Hugs sue. Oh and good luck xx

  • Hi Jane,

    The there's have given very good advice, but I just wanted to add, you say you are already receiving DLA, is there any chance you have kept a copy of the form you originally filled in? If so that is really good as you can use that as a base on which start. You then need to update how things gave changed for you since then, also I think it differs slightly according to whether you are receiving the mobility or care component, or both, and at what level.

    It is great that your doctor will be happy to give you backup information, also if you are seeing any specialist, say a rheumatologist, then it might also be worth asking there for a letter confirming your treatment under them. I think the more professional "thwack" you can give them, the better.

    As everyone has said there is much good advice to be found here on the site too, so I hope you manage to fill the nightmare form in and truly hope you get the best possible outcome. Do let us know how you get on. Best wishes :-)

    Foggy x

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