Just a thought!!: Wouldn't it be good... - Fibromyalgia Acti...

Fibromyalgia Action UK

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Just a thought!!

electricjaws profile image
14 Replies

Wouldn't it be good if our bodies Glowed like a fireflies bum !!in all the areas it hurt and maybe different colours say red for severe pain and orange for not so severe areas etc...

Then firstly people wouldn't say you look well "

And then you wouldn't have to answer a load of stupid dwp just take someone with you if needed and strip off and say nothing!!

What makes me laugh with the forms and the interview with them is they do not associate pain, pain increase , they just won' t talk about the word pain as if it is taboo, they just want to know what you can and can' t do which is utter nonsense!!

So at your next review keep mentioning the word pain and look at the interviewers face , it will turn to stone every time you mention the word pain!!! Or they will look a bit uncomfortable

Personally I would light up like a flipping Xmas tree, as well as fibromyalgia I have other severe pain from other illnesses I have!!

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electricjaws profile image
electricjaws
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14 Replies
Regnofibro1 profile image
Regnofibro1

Fireflies aglow!!

Fibrofoggiest profile image
Fibrofoggiest

Hi EJ 😃😃

Long time no see - I won't ask how you're doing as your post says it all.😳

I think your idea is great and as I have an interview looming large on the horizon I will certainly use the word pain as much as I can and push them to acknowledge what I am saying about it.......if they think they can push Foggy about they've got another think coming !!! 👿👿

Has your itching eased at all? I do hope so, mine comes in spells and drives me to distraction then seems to go away and reappears ad nauseum.....gggrrrrrrr

Anyway, really nice to see you again, even though you had me foxed with your new avatar 😉😉😃😃😃😃😃😘

Fibromepainless profile image
Fibromepainless

That woulfvbe excellent if we could, I'm a bit fed up with people disbelief ing me, x

achydunlin profile image
achydunlin

LOL! Great idea - I would light up in various places on different days - it varies so much like most on here. Usually hands... but often elbows, wrists, knees, feet, hips, bum (that would be funny - I often get an awful deep ache in my buttocks - does anyone else - with your idea I'd have a glowing bum!!).

Lisahelen profile image
Lisahelen

Think they might go on the basis that everybody gets pain sometimes in some part of the body and sometimes quite bad, but be like other people, take two paracetamol and you will be ok in a little while! Try using debilitating as your buzz word lol

littleeffie profile image
littleeffie

Perhaps we could just make some different coloured velcro patches with ouch arrgh too much ****yes pain is a four letter word and the like written on them. Prefer the glowing but when needs must.

rosewine profile image
rosewine

How I've missed your comments. I would be like Joseph and his technicoloured dream coat but your Xmas tree expression is just as good it must be one of the fibre optic ones. We would all look like one of those heat map things but glowing in different places and like the fibre optic tree changing every couple of minutes.x

nedd profile image
nedd

Perhaps we could form our own flash mob.

Shazzzy profile image
Shazzzy

Having cocydenia my bum would absolutely light up like a firefly's.

TheAuthor profile image
TheAuthor

Okay, I love this idea but when you are with the dutiful guys from the DWP instead of lighting up like a fireflies bum, simply light up a cigarette! You are guaranteed to get a response? Probably not the one that you are looking for but one of a mental health condition as smokers are viewed in this light these days?

I want to genuinely wish you all the best of luck if you decide to try this? I am only joking way by the way to anyone who is reading this?

All my hopes and dreams for you

Ken

Regnofibro1 profile image
Regnofibro1

I am thinking Christmas lights!!'

TheAuthor profile image
TheAuthor in reply toRegnofibro1

Of course?

Regnofibro1 profile image
Regnofibro1 in reply toTheAuthor

I do believe it might let them know where the pain is!!

Lisahelen profile image
Lisahelen in reply toRegnofibro1

So in you all go, drop pants turn around and looking like those blue bummed baboons say ' look what You've just done! On top of all my other ailments! Or should that be the bottom?' Lol

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