Anyone suffering from constant headac... - Fibromyalgia Acti...

Fibromyalgia Action UK

59,440 members66,488 posts

Anyone suffering from constant headaches?

15 Replies

I seem to be having headaches every day, my oh is worried that the docs are blaming fibro without looking at anything else :) nice he cares ;) is this a common problem with fibro? Big gentle hugs to you all and hope all is well....Susan :)

15 Replies

Yes most days mainly first thing in the morning

If I touch places In my head I can tell where the pain

Is although it feels like a head ache. if that makes

Sense, mine does not last long

Love Viv x

in reply to

You make sense, unfortunately mine will not go away, on the bright side I have a constant companion lol. Thanks for the input VIv and hope you are well..Susan :)

Julie63 profile image
Julie63

Hi tiredalot, I get a lot of headaches, but have arthritis in my neck, clench my jaw, have trigeminal neuralgia, tinnitus, and don't wear my glasses all the time when reading. Sorry to list these, but there are other things that can cause headaches than fibro, & someone needs to tell this gp that. I didn't mean to worry with this list, it could be fibro, but have you had your eyes tested? I'm having my eyes dilated next week to check my floaters are nothing to worry about - prob get told it's just fibro! Gentle hugs susan, Julie xxx

in reply to Julie63

Hi Julie, like you I clench my jaw a lot and have slight neck damage. Hope your appointment goes well for you and thanks. Gentle hugs being sent to you also.....Susan :)

Thanks jessam, when I do they don't even acknowledge the question so I assume I really don't need to worry. The question was to stop my other half worrying basically. Hope you are keeping as well as you can be....hugs Susan :)

TheAuthor profile image
TheAuthor

Hi tiredalot40

I sincerely hope that you are feeling as well as you possibly can be today? Yes, I have migraines and just recently they have become cluster migraines so it is never ending. The only way to tell what is causing them is to eliminate things one at a time from your diet and surroundings til you find your trigger effect.

Unfortunately if they are Fibro induced they are difficult to cure, I am sorry to say!

I genuinely hope that you can find some resolution and relief to this issue.

All my hopes and dreams for you

Ken x

in reply to TheAuthor

I am trying that, if i keep eliminating stuff I am going to lock myself in a cupboard and lock it lol. I have taken out all my favourite things and it has made no difference. Does that mean I can put them back and take out the healthy stuff he he. Hope you are well and thanks..Susan :)

TheAuthor profile image
TheAuthor in reply to

Yes! Most definitely! All the bad stuff is fun stuff. About a year ago found out that I was getting severe headaches, asthma and bad stomachs through Lactose, it was about the last thing on my check list!

Take care

Ken x

Aurealis profile image
Aurealis

Have you tried going caffeine free, and check that any painkillers you take don't also contain caffeine?

in reply to Aurealis

Don't take a lot of caffeine, but I have substituted my hot chocolate and tea for water. Sooooo boring!! Thanks....Susan :)

Nanuuk profile image
Nanuuk

My gp sent me to a neurologist who said im obviously a painkiller addict - stop presc me codein based pain meds... over a year later still plagued with daily headaches & now im full of codein & morphine cos & # my spine!

HEADACHE RELIEF: Put palms over ears with fingers to base of skull & tap with your middle finger. Sounded weird when I read it but I was desperate so I tried it & it does bring temp relief AND from tinnitus too!

in reply to Nanuuk

Thanks, I don't tapping funnily enough, had read it somewhere. No releif, mind you the headaches are not always debilitating, just there, and irritating...Susan :)

TheAuthor profile image
TheAuthor in reply to Nanuuk

Hi Nanuuk, Thanks for that, I have just tried but I am having pain problems and can't manage at the moment. But I will give it another go later.

Take care

Ken x

Jjudith profile image
Jjudith

I have had bad headaches and still do sometimes, painkillers don't work at all, then I saw a dentist who specialised in face/head pain, he had trained in USA. It was expensive, £120 but it was worth every penny. He gave me a trigger point injection into my head which was amazing, better immediately, and also he made 2 mouth frames for me to wear, one at night and one in the daytime if I need it. I really find that they help headaches/face pain a lot, I think they relax some muscles that join the jaw to the face called the lateral pterygoids. They were expensive too, about £300-400 altogether. I don't know if you can get them on the NHS, in the end it would save them a lot of money if they did provide them because it would save on painkilling medication over years as well as giving a better quality of life. I wear the night frame every night and never have face/head pain at night now, but I use the day frame which isn't so visible if I have a headache or jaw ache and it is like magic, my pain disappears within 5 minutes, I can hardly believe it myself, it really works. Hope this helps. love and hugs

in reply to Jjudith

Thanks, very helpful. Pain free sounds wonderful... Susan :)

You may also like...

Help with constant severe headaches?

headaches almost every day and its making life so hard on top of all the other pains and symptoms.At

Does anyone suffer from TMJ or Facial Arthromyalgia?

I have suffered from this on and off for 14 years now and the pain is horrendous. I have seen an...

Does anyone suffer from electric shocks

Hi everyone I hope your all as well as can be. I was wondering if anyone's experienced electric...

Has anyone suffering from fibro had major surgery - and problems?

year go but doctors would not discuss fibro or a connection. I have had pain in the leg ever since...

does anyone suffer headaches and itchy eyes.

hi all, does anyine suffer headaches. i have them most days and can range in how bad they are from