Has any1 used this drug before& did it help ease ur symtoms?
Any feed back would be appreciated x
Has any1 used this drug before& did it help ease ur symtoms?
Any feed back would be appreciated x
Hello Weelamb,
I take this medication regularly and for my Fibro symptoms I can honestly say I could not be without it. When I was at my worse my Gabapentin was changed to Pregabalin (Lyrica) and I can honestly say it made the world of difference.
Pregabalin (Lyrica) is one of the recommended medications for Fibro, please see our website;
fibroaction.org/Pages/Other...
Here is some drug information which may be of interest also;
patient.co.uk/medicine/Preg...
I hope you find it helps your symptoms too
Best Wishes
Emma
FibroAction Administrator
Hi Weelamb
I sincerely hope that you are feeling as well as you possibly can be today? I don't personally use this drug but my wife does for her MS. She gets on very well with it and does not have any side effects.
I genuinely hope that it works well for you also.
All my hopes and dreams for you
Ken
Hi weelamb, Im on 200mgs morning & night, had no real probs with it. Bit of overtiredness, hunger & thirst when started & when doc increased it 2 weeks ago. Stops the pain in my back,the cramps in my legs & feet so its been good for me, Julie xxx
Awe thx u Julie for ur reply, yes been prescribed this today, after being on morphine for a while without any relief hoping it so works as doc says it's wonder drug hope he's right:-)) I'm only on 100mg p/day at min with the hope to increase, I've taken my first 50mg wit no sign of anything yet, mm sucrose Rome wasn't built in a day ehh
thxs again hope all is well with u x
Hello Weelamb,
I thought this post below may be of interest as many people living with Fibro do not find benefit from Morphine, me being one of those people who find no relief either!
healthunlocked.com/fibroact...
I hope you find the right medication combination for you soon. Please do look at our website fibroaction.org and remember it is usually best to try to tackle the symptoms using a combined approach.
So you may want to look into our factsheet about Complementary Therapies too, here's the link;
fibroaction.org/News/New-Co...
I hope you find other tips around the community forum too!
Emma
FibroAction Administrator
Yes used it for 2 years never understood why and what I was taking it for better off without it made me tired. That is my experience dont know if anyone else will say the same. Regards Merlin
hi weelamb,i take 150mg twice a day & i couldn't be without it, that & tramadol have made a lot of difference to my pain, i take others too but but i couldn't live without these 2 now x
hi weelamb; i take 150mg twice a day & i couldn't be without it now, that with tramadol have made a world of difference x
Tramadol doesn't work on me any more but is a good pain releaver, ( that's not spelt rite)
weelamb, i started off on 75mg twice a day, i was given it as tramadol was not enough it only took the bare edge off pain, even patches didn't make any difference & apparently they don't help fibro, so pain man told me. im not totally pain free i have it 24/7 but if i don't keep on top of my meds god do i know it! even now my feet feel like ive been walking around all day ( normal person) but i havn't been out since tuesday, when i went to dentist & dr's. i still can't do anything much without severe pain. but what can we do ?..... xx
Hello Weelamb,
That's unusual because Tramadol although opioid medication, it is recommended for Fibro as it has a Serotonin pathway unlike the others and report suggest this is why it helps Fibro.
Simple analgesics, such as paracetamol, and mild opiates, such as codeine and the atypical opiate Tramadol, are recommended for the treatment of pain in Fibro patients (Lindsey Middlemiss, Founder of FibroAction 2009)
fibroaction.org/Pages/Analg...
Interesting to hear your experiences tho! I see on another thread you find relief from Capsaicin, so do I. It is said to naturally decrease Substance P which is a chemical excitable to pain and we are reported to have increased Substance P.
Increased levels of the pain-transmitting chemicals substance P and nerve growth factor in the spine (Lindsey Middlemiss, Founder of FibroAction 2009)
fibroaction.org/Pages/What-...
I hope you find this of interest
Best Wishes
Emma
FibroAction Administrator
Hi there, yes I take 450mg pr day, and it helps except for feeling tired. I,ve learned to take my last dose late and then I sleep better. Hope it helps you.
Hi wild woman , thx u for ur reply, oh 450mg I'd be sleeping the clock round I fink awe hope my doc increases dose as at min only 2tabs taken & nothing happening yet, surpose it takes a while to get in2 system , do u feel pain now ? X
Hi wee lamb, sorry for late reply, yes, I do feel pain, but not as bad as before, I asked what to expect from this drug, and they said it just enables you to manage fibro so I guess that,s it. They always start you off on a low dose and the tiredness does get better. Xxx
hiya...i used this a few years back..it did help my symptons however i found that i was getting a lot of numbness in my limbs and after taking it in the morning i felt so tired..and was hardly able to motivate for work. I googled my meds and then found out about cymbalta.. and havent looked back since taking this has helped a lot since.
Awe thx u 4ur reply, yes I think I no about the numbness? I've wakened up wit pins &needles in my arms most mornings but friend says it's ok as she had same feelings when she took them. A year ago? Still have a lot of pain I need more strength feels like I'm gonna have to up the anti in some pain relief tabs mmmmmm ! Hope all is well wit u& every 1 else that has responded to me!
Cheers to all&hava hapi w/end :)))xx
I've been taking Lyrica for several weeks now and it has made a remarkable difference in my life. I started out on 50mg BID and am now on 75mg BID. I don't know how I've managed without it. It seemed to relieve my symptoms within the week.
Sorry 4late reply, my fur baby (dog) has been ill, so been busy cleaning up after him, washing& re washing his beds, fink he must have ate sum thing he shouldn't have. Any ways lindalo 1. I've now on this a week& 50's aren't doing anything for me at all I still have a all over pain, with the look of limping as my leg is so outta sync at mo, fink I need to increase the drugs?! Ahh hope ur well& managing ur pain better, thx u 4 taking time to reply
x
Hi Weelamb
I have been prescribed Pregabalin for fibro and have been taking it for about 7 weeks now. The only side effect I have is a massive weight gain! I have put on nearly a stone, which I am really upset about. I spoke with the practice nurse last week and she did say it would level out. I do walk a couple of times a week and eat healthily, but the weight still goes on. On a positive note, I am sleeping so much better and not waking up several times a night. Or if I do, I seem to go back to sleep straight away. It has also reduced the pain levels, however, I am having a bad day today unfortunately!
Good luck with this, it doesn't work for everyone but I would persevere and see how you get on. Take care, Amanda x
Ahh sorry to hear about ur weight gain doc told me not to worry about that, mmm I hope I don't gain weight as I had surgery 6 months bk& really don't want to be any bigger
I'm happy with my weight&size at min,but defo have noticed me having snack attacks, I don't know if it's the tablets/me giving up smoking& just boredom?!
Boo to having a bad day, I so no know what a bad day is , everyday seems to be a ad day for me! but just keep plodding on I guess! Thx u for ur reply :-)it's nice to hear that after a few weeks it starts to get better x
hi weelamb, i take 150mg twice a day & yes it helped a lot, with other pills too, it did cause weight gain & i tried to stop taking it to see what i was like but even after a couple of hours i couldn't stand the pain so it definetaly helps & i would rather reduce my pain & be a bit bigger than i want than to be in all that pain xx
Hi bluebell10, mmm that's a hard 1 to call, pain r increase in size, mm I think I wud take the pain tbh, as now I'm getting kinda used to it, nothing seems to help it's either be fully setdated as to haven't a clue which day it is,be sick& just sleep/ be a grouch & suffer the pain& see every hr of the day on the phone
Tramadol has been a life saver for me but now trying to cut down because of bad constipation, but feel so bad when I don't take it. I read about it's addiction potential but thought it would be okay. Not sure now though. I have been offered Pregabalin but worry about weight gain, I'm not thin now.
Sorry 4late reply, I haven't been well. Silly fibro! Awe tbh my dose of 100mg of this surposely wonder drug is not working, I've been in constant pain last few days, I even tried up.n the doses little myself but still no joy, grrrr .. So I fink I'm gonna hava rummage in the cabinet & what ever comes to hand I will take as can't keep continue'n being in pain all the time, xx