I have been on the waiting list for a... - Fibromyalgia Acti...

Fibromyalgia Action UK

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I have been on the waiting list for atos for over 3 months what do I need to take with me when they eventually see me ?

vixen49 profile image
6 Replies

Cos my fibromyalgia isnt getting any better and there are times when I feel like crying and fibrofog is really bad I loose all consentration

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vixen49 profile image
vixen49
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6 Replies
jillylin profile image
jillylin

Hugs. ATOS are not having their contract renewed so I don't know what is happening. There is a post someone on the site but I can't think exactly what it was about due to the 'fog'. I know someone will tell you though.

Hugs

Jillyxx

vixen49 profile image
vixen49 in reply tojillylin

Thank you jilly for your kind help I will try and look it up hugs back to you xx

TheAuthor profile image
TheAuthor

Hi vixen49

I sincerely hope that you are feeling as well as you possibly can be today? I am so sorry to read that you are experiencing these issues at the present time, and I sincerely hope that you can find some resolution and relief to the problems as soon as possible.

I have pasted a link below from a post placed by Mdaisy relating to benefits, and I sincerely hope that you find it useful.

healthunlocked.com/fibroact...

It would appear that ATOS will not be continuing in their role as assessors for the DWP. However, another company will come along and tender for the position. This may take some time, so please do not worry about this.

I usually suggest to members that when they are going for their assessment that they should take every last thing they can along with them. That includes all letters relating from hospital appointments to test results etc, as the more you have in evidence on your behalf the better it will be for you.

I have also pasted below the FibroAction website link as it holds a great amount of information that you may find useful.

fibroaction.org

I sincerely wish you all the best with your claim and please keep us all up to date with how you get on.

All my hopes and reams for you

Ken x

jennroberts78 profile image
jennroberts78

Hi vixen 49.

I had my face to face with atos last year.

I took my mam for support and to help me incase I had to imitate a scenario ( I didnt thank goodness!)

Also she took notes for me so I could review the meeting at a later date.

One thing I did notice is, in the newcastle office, there were cameras EVERYWHERE!, including in the car park and on the street approach. ( im sure they all had a good laugh at me trying to get out of the back of a 2 door car - even I couldn't do anything for laughing)

I also took a file full of letters from hospital/consultants etc, I also too a fact sheet about fibro as I assumed (and was right) that they wouldn't have a clue about fibro or its effects. (She included it in my case report)

My list of meds, my crutches ( or any aids for walking etc.)

I hope this helps, I did have more.to say, but the fog has crept in lol oooo if you can, try not to have any pain relief for at least a couple of days or more,so atos can see how you are without relief xx

Gentle hugs

Jenn

vixen49 profile image
vixen49 in reply tojennroberts78

Hi Jenn thank you so much that has helped a great deal I'm gonna ask my mom if she go with me plus I might have to go back to my docs I will see if I can go with out my tablets for a day or 2 ooops mabad my name is Ros warm wishes

solowheelie profile image
solowheelie

Having experienced ATOS I would suggest you take every bit of evidence you have - medical appointments and letters related to test results/ diagnosis, (they do not always have access to these) together with photo's of you using any equipment you use whether that is a stairlift, grab rails or specialist knives. And definitely take someone with you and give them permission to speak in assessor's hearing.

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