Supposed to be on a training day today but on top of permanent fuzzy head and unrelenting tiredness I can't shake of a cold or more specifically a sore throat that keeps flaring up. Seeing GP later. Had been working from home but some days you have to say enough! Spoke to a colleague last week who also has Fibro (didn't know before), she made a valid point that employers should acknowledge the efforts we make to be at work rather than focussing on when we are not. In short we become adept at presenting a facade that betrays how we really feel.

12 Replies

  • I couldn't agree more with what you've written, although I no longer work even in day to day life I find myself putting on a facade in an attempt to lead a vaguely sane life, and indeed it is a betrayal of the truth, truth though that some people find very hard to understand.

    I wish you well sniffer and hope that you can soon get on top of that cold and sore throat very soon! I'm sending positive healing vibes your way:-)

    Foggy x

  • Thank you, much appreciated. I feel profound fatigue is very difficult for people to get their head around. Perhaps seen negatively, even as a choice? Or indicative of depression?

  • Yes, I would agree with you, and add I think people may view us as lazy, which couldn't be further from the truth. I sometimes think I wish I could make so and so go through a day feeling as I do, they would pretty soon change their tune !

    Foggy x

  • I agree, I'd give anything for them to endure what we do :)


  • Lazy - yes!!!! As you say, if only?

  • I think Foggy has hit the nail on the head sniffer :)

    I've always been viewed as lazy by my friends but if they understood the truth that a half hr session listening to them means I could sleep for hours when they leave, it exhausts me just like a simple trip to the local shop :o

    You are among friends here who understand sending healing and energising fluffies to you

    :) xxxsianxxx :)

  • Hello sniffer

    I think you are totally right, I have ended up sometimes presenting a false image of myself just because its easier than trying to explain to someone how I am feeling and what I am capable of doing. I've lost count of the times I've heard " I think I've got that thing you've got cos I'm feeling a tired" also if you look ok and don't moan all the time people can assume that you feel ok even when they know you have an illness. I've had to learn to be assertive in work but its hard as I'm not like that naturally. It's only taken me 50 years to achieve !! Hope you are feeling much better soon and your throat eases. Take care x x

  • Many thanks

  • Hi Sniffer8

    I sincerely hope that you are feeling as well as you can be today? Thank you so much for sharing your thoughts and insights with us all, I agree totally with you. I think there is too much emphasis on what we can't physically do and not enough recognition for what we have actually struggled to achieve.

    All my hopes and dreams for you

    Ken x

  • Of c ourse we do hence when asked "How are you?" we reply "I am fine" well what rubish is that. Mind you a lady asked me the other day and I told the truth- needless to say she was gobsmacked and hurried to say Goodbye. I must admit I chuckled after, naughty me! Imagine the havoc we could cause if we all answered with the real truth and nothing but the truth --LOL

  • Hi gins

    I sincerely hope that you are as well as you can be today? Isn't this just so true! I always feel compelled when bumping into somebody I know to say I am fine! I have also in the past, told the truth and they hastily depart.

    Take care my friend

    Ken x

  • How do you do Ken I hope you are managing well my friend in the face of adversity,

    It is all we can do accept and fight on!

    So we link arms across the space and take on all comers never mind their race. ( oops perhaps not the best comment all in the best possible taste)

    Keep smiling my friend


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